Jacob and I are running the inflatable obstacle course in Ripon on 14th Oct to raise some much needed funds for the C.F. clinic in Leeds. We have chosen to do so as Jake, Jacob's cousin, lives with this daily struggle.

Cystic Fibrosis is an inherited life threatening condition mainly affecting the lungs and digestive system as they become clogged up with thick sticky mucus. It also causes problems with the sinuses, bones, joints, liver and can bring on Cf related diabetes.
When the lungs are severely damaged then a lung transplant is need.

Jake was born in March 2001.He took very ill with breathing problems at 5 days old and nearly lost his life. After 6wks of intensive care treatment he got the diagnosis of Cystic Fibrosis.
He was put on daily treatments that would keep him alive but still spent a lot of times in hospital at St James Leeds.

The Ward and Cf regional unit were moved over to Lgi Leeds in 2010 and became ward L30.The wards doctors, nurses,physios and dieticians have been an important part of Jakes life giving him important treatments to keep him well.
They have become good friends to the Barker family and they are always needing new items on the ward mostly bought through fund raising.

Now, Jake is 16, his health has worsened and his lung function is now 50% causing breathlessness.

His daily routine consists of 50 tablets,2 physio sessions,5 nebulisers and an overnight feed through his gastrostomy feed. He also has 6wkly intravenous antibiotics for two weeks at a time either on the ward or at home.

As Jake and his family spends so much time there, I would like to raise as much funds as possible to make stays there a little easier.