This Is for three year old Florence. She was diagnosed with a rare life limiting condition called late infantile gangliosidosis otherwise known as Gm1. It is a genetic condition which has been inherited. It's a really tough diagnosis to come to terms with. It affects her muscles which means she is likely to loose the ability to walk, talk and swallow. It is also life limiting. We've been told that she will most likely not live past the age of 10. These next 2 years are crucial as it's regressive and she will start going down hill. I believe in miracles and there is an amazing charity in America called the Gm1 foundation. They are raising money for human trials to start at the end of this year.

I am raising money to support Florence in this journey and to help us pay for extra holistic treatments. Also for any equipment she may need. Also a percentage will go to the charity in America to support these trials and maybe even get Florence there if she is lucky enough to get a place on the trial.

Any amount of money counts. We are doing various charity events to try and raise awareness too for Florence and all the other children suffering. It really is a devastating condition. But with your help Florence has a good chance of beating it. We've got to try anything we can and support her in every way possible.

Thank you for taking the time to read and donate. It really does mean so much. The amount of support we've received has been heart warming and has got me through on the darkest of days.