Florence has just turned Five. She is a strong willed little girl who loves life. However Florence suffers from a rare genectic condition called late Infantile GM1. This horrendous condition has already taken away her ability to walk and talk. It will eventually take her life far too soon around the age of Ten.

I want to raise money yo give Florence the best possible life. To have the best possible memories with her 7 year brother Riccardo.

There is hope. Fundraising will also support the Cure GM1 Foundation that is parent led and non profit charity. The Gm1 foundation has worked tiresly to bring a cure to children like beautiful Florence.

Currently there are three possible trials in the pipeline. This could be life saving for Florence.

12 friends are taking on velocity 2 Zip Wire in Wales where you can reach speeds of 100mph! We are doing this to give Florence the best memories with her brother Riccardo and give a chance of making the trials happen.

15 of us are also taking on the Great Mcr Run in May to raise money for Florence. I will be pushing her around the course in her running buggy! I wont ever give up on Florence being cured. She gives me the strength everyday I need to carry on fighting for her ❤️

I am also looking to adapt the garden to make it more accesible for Florence. She loves being outside and it would give her the chance to make amazing memories with her brother Riccardo.

Any amount you can donate would mean the world. Thank you for reading and supporting Florence.

Action is hope 🙏❤️

Jenny (Florences Mum)