*******UPDATED********

Due to Covid we were unable to do the jump on the 16th May. Its been reschduled and is now on the 4th October in three weeks! To say im nervous is a complete understatement! The reasons for doing this jump are still very much the same. Florence has been a absolute trooper during lockdown and durung shielding for months. I know its an uncertain time financially for so many so please if you can spare a few pounds please know it means the absolute world as we continue to support Florence and the unknown future. Trials have started in America. Unfortunalty at this time Florence has been unable to participate but I hope that she will be able to benefit in the future and I will continue to hope and pray a cure comes soon. We are nearer than we have ever been but time is of the essence 🙏

Thankyou from the bottom of my heart for your continued support ✨

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My beautiful and brave daughter Florence who is nearly 6 suffers from a rare and life limiting condition called Gm1. Its an extremly rare genetic condition. Weve been told she wont live past her tenth birthday.

Since Florences diagnosis Ive realised we need to concentrate on making the best memories with her big brother Riccardo who is 8. This money will enable Florence to have amazing holidays and experiences with Riccardo and me. The money will also help fund extra treatments not available on the Nhs. Ive always believed in a holistic approach to keeping Florence in the best condition to fight it.

There is hope.....trials have started in America and Fundraising for Florence will support the incredible Cure Gm1 Foundation. Its a race against time as its a regressive condition and time is not on our side.

On the 16th May me and three crazy friends will do a tandem sky dive from 15,000 ft to raise money and

awareness for Florence and Cure Gm1.

Please support us if you can! We are all extremley nervous but are being brave for Florence 💕 even if its just telling Florences story. We need to spread much needed awareness of this terrible and heartbreaking condition.

Thankyou for taking the time to read our story 🙏🪂

Jen (Florences mum) xxxx