Jenson was a 2yr old boy who had been diagnosed with a brain tumour. In November 2017 he developed hydrocephalus causing pressure to build up in the brain. Whilst under going major surgery to remove the tumour he acquired a brain injury and developed Posterior fossa syndrome. He lost all his mobility and muscle tone. He could not speak,eat,walk,sit up or move his head. This syndrome can take children years to recover and no one knows if he'll regain all the mobility he had.
He was referred to a neuro rehabilitation centre called The Children's Trust in January 2018 and remained there for 4mths until May 2018. He fought hard to regain as many physical skills as possible and managed to go back to pre-school and make friends. He then suffered a devastating blow as his tumour began to grow back in 2019. He has been on weekly chemotherapy and finished his last treatment during Lockdown in July 2020.He continues to remain stable with the next scan in June.We have funded his physio, swimming lessons and horse riding but we need help as Lockdown has forced alot of his usual clubs and classes to close.
His family have been by his side since day one. He has a brother & Sister Mason 3yrs & Sophia-Rose 10yrs. The great progress which has allowed him to attend a mainstream Primary School needs to continue.Jenson is standing unaided but needs more stamina to keep standing and therefore still requires 24hr care because of his uncontrolled balance and coordination.
This money will enable ongoing rehabilitation using specialist equipment to improve his chances of walking independently.Having a child with an acquired brain injury is a profound life changing experience.Balancing everyday life with Jensons recovery remains challenging but as a family we hope to get Jenson back on his feet so he can play football and enjoy being independent.
Some of the donations made will go towards Sebastians Action Trust as a thank you for helping us during a traumatic time.