We have had to set up a crowdfunding page for Jenson as the charity that was mentioned on his other account are no longer helping Jenson and have also not paid any money over to him what has been raised. We are currently trying to get the money back that is owed to Jenson but in the meantime we still need to fundraise, so we do not want any donations going onto this other account as the money will be paid over the the Darren Wright Foundation and we are pretty much back where we started as we have been let down by this charity. Sp please use this account.

Jenson is 6 years old and has a medical condition with the name, Spinal Muscular Atrophy (SMA) Type 2, Jenson is completely dependent on us as parents for all of his needs, 24 hours a day.

We need adaptations to our home to enable Jenson to grow and progress in a safe and suitable environment & we all want to stay in our family home. Jenson has been awarded a Grant of £30,000 from our local Council. However the adaptations that need to be done to our house it going to cost around £60,000, So we have to raise £30,000 however, We are hoping to achieve this through fundraising, so we are organising events in our area with the help of local organisations, friends & family.

The work that is needed include a Single Storey Extension to the back of our house, A Ramp, Widening of Doorways, Removal of downstairs walls, Wet room, Installation of a ceiling track & Hoist, amongst other works. This will help me alot as I will have my own room that I can access with my wheelchair, as I am getting heavier too.

Jenson was diagnosed with SMA when he was 14 months old and as you can imagine our world felt like it was torn apart. Since the diagnosis we have learnt about the condition and what his needs are and what they will be in the future but we are always still learning new things about it. There is no cure for Jenson's condition, it is a genetic disease that causes Muscle weakness and progressive loss of movement. This occurs due to deterioration in the nerve cells (motor Neurones) connecting the brain and spinal cord to the body's muscles.

As the link between the nerves and muscles breaks down, the muscles that are used for activities such as crawling, walking, sitting up, and moving the head become progressively weaker and shrink (atrophy), Mental abilities are unaffected by SMA. There is no treatment for his condition and if Jenson becomes ill it effects him so much worse than a normal child of his age. Jenson can go downhill fast for even just what would be a simple cough and cold, It is a worry when he is ill and we are constantly checking his breathing as this could be dangerous for him and he could end up in hospital.

At present there is no cure for SMA but we would still do anything for our child as any parent would. So we would like to give him the best possible life.

Jenson is such a bright boy and is very cheeky, He makes everyone smile. He is a loving little boy that needs some help.

Thank you for taking the time to visit and read Jenson’s page. We hope you will be able to help as this will make a huge difference to Jenson and his quality of life.