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JJ Kane raised £375 from 12 supporters.

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Closed 22/12/2017

7%
£375raised of £5,000 target by 12 supporters

    Weʼve raised £375 to help fund my medical research into chronic,autoimmune conditions. I suffer myself I am researching to get fellow suffers an early diagnosis

    Location
    Somerset United Kingdom
    Time left
    Funded on Friday, 22nd December 2017

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    Story

    As a high end spectrum sufferer of Fibromyalgia, CFS, and Lupus sle.

    These conditions are life changing, and even fatal.

    I am researching all autoimmune conditions with the full support of my GP, and the research will be delivered to the MIneral Hospital Bath, which is the centre of excellence for these conditions,and openly admit they have no Idea what causes these conditions, they just treat the symptoms. It can take an aeon to be diagnosed, so I am writing a paper for the medics,and also fellow sufferers.

    I have been bed bound for 7 years, before this I ran my own business as a PR Consultant, I want to help other to get the medication and diagnosis earlier as the longer you have to wait for a Diagnosis the higher up the spectrum your conditions will be.

    I hope you can help me by donating to this crucial research, it is as much needed as cancer research,as the NHS seem to know very little about this area of medicine and do not spend money on research.

    Updates

    5

    • JJ Kane6 months ago
      JJ Kane

      JJ Kane

      6 months ago

      An update for you. I have contacted another research team in the USA, lead by a consultant in autoimmune disorders, and they have shared with me that FM does scar the brain, as MS causes lesions FM does a similar thing. Why aren't UK patients getting a brain scan as a first course of action when they present with these very debilitating conditions, I have let my medical team know and it is now being passed to the centre of excellence in the UK, as I want their feedback on why this is not available to us on the NHS.

      Update from the Page owner

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    • JJ Kane6 months ago
      JJ Kane

      JJ Kane

      6 months ago

      Hi to everyone, I now have enough money to start my research, but we have a long way to go, please keep supporting me with this. These conditions have taken my life and many of you out there are suffering needlessly through misdiagnosis go to my @caravanmusic twitter page and you will see exactly how much these conditions have drastically takenover my life.

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    • JJ Kane6 months ago
      JJ Kane

      JJ Kane

      6 months ago

      Thank you for your support, I am now collecting data from real people all over the world who suffer, and because of slow diagnosis are bedbound, and one husband wrote in to say by the time his wife was diagnosed the Lupus had already stared organ damage and she sadly passed away the week after she was diagnosed after years of living in bed . If she had the Medical team with the awareness and aptitude to think outside the box, she would still be a live today. Fact and is written in her records.I myself have lost both my knee caps already

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    6 months ago

    JJ Kane started crowdfunding

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    Supporters

    12

    • Lucy Davie

      Lucy Davie

      Sep 23, 2017

      £5.00

    • arable desert

      arable desert

      Sep 7, 2017

      £10.00

    • Bill Cummings

      Bill Cummings

      Sep 4, 2017

      £10.00

    • Matthew Radics

      Matthew Radics

      Sep 3, 2017

      £20.00

    • Anonymous

      Anonymous

      Sep 1, 2017

      Hey M'ladyYou're a heck of a gal....., so keep batting.Lots of love and Blessings.x

      £100.00

    • Phil W

      Phil W

      Sep 1, 2017

      We wish you all the best in creating both awareness and trying to find a cure . Suburban Myth

      £50.00

    • Alan Coulson

      Alan Coulson

      Aug 29, 2017

      Happy to support JJ. Good luck!xx

      £20.00

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    About Crowdfunding
    About the fundraiser
    JJ Kane

    JJ Kane

    Somerset United Kingdom

    Having a life long battle with Chronic Illness , I am helping my medical team with much needed research to help get people a quicker diagnosis, and the right treatment as early as possible. I am also writing a patient support book. Every donation will receive a track called Angel

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