An update for you. I have contacted another research team in the USA, lead by a consultant in autoimmune disorders, and they have shared with me that FM does scar the brain, as MS causes lesions FM does a similar thing. Why aren't UK patients getting a brain scan as a first course of action when they present with these very debilitating conditions, I have let my medical team know and it is now being passed to the centre of excellence in the UK, as I want their feedback on why this is not available to us on the NHS.

Hi to everyone, I now have enough money to start my research, but we have a long way to go, please keep supporting me with this. These conditions have taken my life and many of you out there are suffering needlessly through misdiagnosis go to my @caravanmusic twitter page and you will see exactly how much these conditions have drastically takenover my life.

Thank you for your support, I am now collecting data from real people all over the world who suffer, and because of slow diagnosis are bedbound, and one husband wrote in to say by the time his wife was diagnosed the Lupus had already stared organ damage and she sadly passed away the week after she was diagnosed after years of living in bed . If she had the Medical team with the awareness and aptitude to think outside the box, she would still be a live today. Fact and is written in her records.I myself have lost both my knee caps already