Weʼre raising £500 to help raise awareness for more research into the disease Lewy Body Dementia. In memory of our wonderful Mum Joan Carey.
- London, UK
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Our lovely Mum Joan was diagonosed in November 2017, with Lewy Body Dementia. She passed away on the 14th July 2018. This brain disease is not as well known as other types of dementia yet is a cruel disease with devestating consequences.
We as a family knew something was very wrong but the doctors could not identify a cause. Her memory started to get worse, she often forgot who her daughters and grandchildren were and then her balance mechanism stopped, resulting in a broken wrist followed a month later with a broken hip. She very soon became bed bound.
The previous year Mum was undiagosed and had to undergo a barrage of tests.
It was only when she started having hallucinations that the medical team opted for a DATscan, which showed small clumps of protein that had built up inside nerve cells in her brain. The protein clumps damage the way the nerve cells work and communicate.
Mum was finally diagnosed with Lewy Body Dementia.
The average life expectancy from diagnosis is 5-7 years. Our Mum who has always been healthy only lived for 8 months.
Through this time we had a lovely team of Carers, District Nurses and a wonderful Occupational Therapist. However despite this we were always playing catch up as she was deteriorating so quickly.
The nurturing Mother who cared for us, and so many others in her local community, was now dependant on us. We had to be her voice, her support system and her advocate. And we wouldnt have had it any other way.
Mum requested no wreaths at her funeral but would have been very grateful for a donation to a charity, and what better cause then to the research into Lewy Body Dementia.💗
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Aug 14, 2018
I hope that more can be done to understand this dreadful disease that took such a warm, kind and caring person. Joan will be fondly remembered xx
Aug 1, 2018
I'm so sorry that this disease snatched Joan away... Your kind nature and endless smile lives on in your family... You will never be forgotten. Xx💚xX
Jul 30, 2018
Sorry we weren't able to be at Joan's funeral today. Joan was such a caring person and we will miss her very much. Hope this will help prevent other families going through the same Lots of love, A,+ G
Jul 26, 2018
I am thinking of you and your family much at this time. We love you very much. I hope the donations will help considerably towards more research about this specific type of dementia .xx
Shelley, Luis & Elva
Jul 24, 2018
Can’t believe that Aunty Joan has passed. Has been a shocking experience that she didn’t deserve. I hope that more can be done to help understand and treat/ cure this horrible disease. Missed dearly x
Jul 24, 2018
Jul 23, 2018
What a wonderful lady she had the most beautiful smile .I’ll always remember her coming to collect the girls when they were little. Rip Joan 💕x💕x💕
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