Joan's story

In 2004 I was diagnosed with ME. Then, and it remains the case today that there are no NICE approved medical treatments for this profoundly disabling condition. I was fortunate enough to be re-diagnosed with a different condition in 2005, which allowed me access to effective medical treatments. It's been a long slog; however, I am recovered to get back into cycling which I loved before becoming ill.

My cycle will raise funds for a Norwegian Daratumumab trial

Daratumumab is a medical treatment used in various cancers and auto-immune conditions. In Norway small scale trials has proven remarkably effective in people with ME, compelling enough to warrant larger stage 3 clinical trials, which are now underway in Norway. Around 2/3rds of ME sufferers respond to this treatment giving them a dramatic improvement in the quality of their lives.

My coast-to-coast cycle ride will take place on the first weekend of November 2025, from Seaham Hall, on the east coast just south of Newcastle to Arnside on the west coast, near my home.

Please can you consider donating to this excellent cause if you are able.

Yours gratefully,

Joan

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