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Joanna Jackson-Matthew (Graces mum)

Joanna Jackson-Matthew (Graces mum) is crowdfunding

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£37,289raised of £50,000 target by 351 supporters

Weʼre raising £50,000 to Pay for Our daughters GRACE'S LIFE SAVING SURGERY, to correct a rare illness where multiple arteries, CRUSH each other. Not available in UK

Tunbridge Wells Kent. UK

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Story

Multiple vascular compression syndromes, are where your arteries and veins are crushed , causing debilitating 24/7 pain and an inability to eat and digest food. This severely impairs the quality of life in otherwise healthy, YOUNG PEOPLE. It is a little known, very rare condition that is difficult and timely to diagnose which robs you of your freedom, friendships, education, dreams and ultimately your life.

This is what has happened to our Grace. She has been ill since 6yrs old, she is now only 14. In her short life she has endured multiple hospital stays, numerous invasive procedures including 5 general anaesthetics in the last couple of years all to no avail. Since September 2018 Grace has lost 20kg in weight. Earlier in 2019 thanks to a combination of an angiogram/venogram (where the femoral artery in the groin is punctured and dye is fed through ) and an 'award winning, Gold Standard colour doppler ultrasound (which we had to travel to Europe for) we have managed to obtain a full diagnosis of MALS (median arcuate ligament syndrome) SMAS (superior mesenteric artery syndrome) Nutcracker (compression of the left renal vein) and May-Thurner syndrome (compression of the iliac vein ). These compressions gradually worsen (as other veins have to compensate when blood flow is impaired) and eventually Grace will be unable to digest food, be unable to eat at all without artificial feeding via a tube, she will develop pelvic congestion and her kidneys will fail and eventually she will loose the ability to walk.

As GRACE is still only so young we want to give her the very best chance of life by having MAJOR MULTIPLE-DECOMPRESSION SURGERY, currently unavailable in the UK.

Grace Daisy, aka "crazy Daisy" is a enthusiastic & loveable character. As the eldest of three inseparable sisters she is loved by everyone she meets and enjoys talking (too much !) to all ages from 02yrs to 102yrs ! She has a fun and caring nature and at the age of only 9yrs she visited the children of 'Mother Theresa House' Kolkata. She is an animal enthusiast which led her to becoming vegetarian at a very young age. She has a close and hysterical bond with her 'Beagle' Billy Bob.

Grace dreams of travelling the world and is intent on working for the Virgin Group to fulfil her hopes of combining her love of travel, people and aviation.

Please help us raise as much money as we can, so that she can have the required surgery as quickly as possible and she can look forward to restarting a normal life.

HELP GRACE fulfil her dreams and live the life she deserves.

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Updates

11

  • Joanna Jackson-Matthew (Graces mum)22 days ago
    Joanna Jackson-Matthew (Graces mum)

    Joanna Jackson-Matthew (Graces mum)

    22 days ago

    IT IS WITH VERY HEAVY HEARTS 💕that it is GRACES 15th BIRTHDAY and she still hasn’t had the operation she requires. SHE IS A YEAR on from her diagnosis and 8 yrs into health investigations and is still in daily excruciating pain. She has been desperately let down and abandoned by the health system that we all expect to care for and protect our children. DESPITE all of the torturous previous months GRACE STILL CONTINUES to apologise for the inconvenience and think the best of everyone. I will update TEAM GRACE Thank you all so much X Grace X

    Update from the Page owner

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  • Joanna Jackson-Matthew (Graces mum)6 months ago
    Joanna Jackson-Matthew (Graces mum)

    Joanna Jackson-Matthew (Graces mum)

    6 months ago

    UPDATE on GRACE. Started intravenous TPN for 15hrs a day, through a PICC line to build up the fat pad around her Superior Mesenteric Artery. This may ease the compression & give maximum nutrition prior to any surgery.

    Update from the Page owner

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  • Joanna Jackson-Matthew (Graces mum)6 months ago
    Joanna Jackson-Matthew (Graces mum)

    Joanna Jackson-Matthew (Graces mum)

    6 months ago

    Grace has had a particularly difficult 48 Hrs, but it’s overwhelmingly amazing that everyone’s keep trucking on for us. . Nearly 50% in just 2weeks. There are no words for how grateful we are. 💗

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7 months ago

Joanna Jackson-Matthew (Graces mum) started crowdfunding

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Page last updated on: 11/15/2019 18.59

Supporters

351

  • Anonymous

    Anonymous

    Nov 15, 2019

    Hi grace - just something for you to buy yourself some well deserved proper tv programs for the next few days - you deserve a little treat. Love from manon, Louis and Jérôme

    £100.00

  • Sean

    Sean

    Nov 7, 2019

    Good luck

    £50.00

  • Christina

    Christina

    Oct 28, 2019

    I pray that the money will be raised to help dear Grace. God bless you all

    £10.00

  • Anonymous

    Anonymous

    Oct 27, 2019

    Wishing Grace a big Happy 15thh Birthday 🎉💎 Sending lots of love Tammy and family Xxxx

    £30.00

  • Karen Wells

    Karen Wells

    Oct 27, 2019

    Can’t imagine what the whole family is going through.

    £20.00

  • Anonymous

    Anonymous

    Oct 27, 2019

    Keep fighting Grace. With all our love from Manon, Louis et Jerome

    £50.00

  • Anonymous

    Anonymous

    Oct 26, 2019

    £20.00

Joanna Jackson-Matthew (Graces mum)

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About the fundraiser
Joanna Jackson-Matthew (Graces mum)

Joanna Jackson-Matthew (Graces mum)

Tunbridge Wells Kent. UK

Grace Daisy Jackson-Matthew is one of three sisters. Grace age 14, Anna-Maria age 11 and Nina age 10. We live in Tunbridge Wells in the South of England UK. Grace hasn't attended school since July 2018 due to the intense pain she experiences because of her Vascular conditions.

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