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Joanna Jackson-Matthew (Graces mum)

Joanna Jackson-Matthew (Graces mum) is crowdfunding

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£31,783raised of £50,000 target by 299 supporters

Weʼre raising £50,000 to Pay for Our daughters GRACE'S LIFE SAVING SURGERY, to correct a rare illness where multiple arteries, CRUSH each other. Not available in UK

Tunbridge Wells Kent. UK

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Multiple vascular compression syndromes, are where your arteries and veins are crushed , causing debilitating 24/7 pain and an inability to eat and digest food. This severely impairs the quality of life in otherwise healthy, YOUNG PEOPLE. It is a little known, very rare condition that is difficult and timely to diagnose which robs you of your freedom, friendships, education, dreams and ultimately your life.

This is what has happened to our Grace. She has been ill since 6yrs old, she is now only 14. In her short life she has endured multiple hospital stays, numerous invasive procedures including 5 general anaesthetics in the last couple of years all to no avail. Since September 2018 Grace has lost 20kg in weight. Earlier in 2019 thanks to a combination of an angiogram/venogram (where the femoral artery in the groin is punctured and dye is fed through ) and an 'award winning, Gold Standard colour doppler ultrasound (which we had to travel to Europe for) we have managed to obtain a full diagnosis of MALS (median arcuate ligament syndrome) SMAS (superior mesenteric artery syndrome) Nutcracker (compression of the left renal vein) and May-Thurner syndrome (compression of the iliac vein ). These compressions gradually worsen (as other veins have to compensate when blood flow is impaired) and eventually Grace will be unable to digest food, be unable to eat at all without artificial feeding via a tube, she will develop pelvic congestion and her kidneys will fail and eventually she will loose the ability to walk.

As GRACE is still only so young we want to give her the very best chance of life by having MAJOR MULTIPLE-DECOMPRESSION SURGERY, currently unavailable in the UK.

Grace Daisy, aka "crazy Daisy" is a enthusiastic & loveable character. As the eldest of three inseparable sisters she is loved by everyone she meets and enjoys talking (too much !) to all ages from 02yrs to 102yrs ! She has a fun and caring nature and at the age of only 9yrs she visited the children of 'Mother Theresa House' Kolkata. She is an animal enthusiast which led her to becoming vegetarian at a very young age. She has a close and hysterical bond with her 'Beagle' Billy Bob.

Grace dreams of travelling the world and is intent on working for the Virgin Group to fulfil her hopes of combining her love of travel, people and aviation.

Please help us raise as much money as we can, so that she can have the required surgery as quickly as possible and she can look forward to restarting a normal life.

HELP GRACE fulfil her dreams and live the life she deserves.

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Updates

10

  • Joanna Jackson-Matthew (Graces mum)1 month ago
    Joanna Jackson-Matthew (Graces mum)

    Joanna Jackson-Matthew (Graces mum)

    1 month ago

    UPDATE on GRACE. Started intravenous TPN for 15hrs a day, through a PICC line to build up the fat pad around her Superior Mesenteric Artery. This may ease the compression & give maximum nutrition prior to any surgery.

    Update from the Page owner

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  • Joanna Jackson-Matthew (Graces mum)1 month ago
    Joanna Jackson-Matthew (Graces mum)

    Joanna Jackson-Matthew (Graces mum)

    1 month ago

    Grace has had a particularly difficult 48 Hrs, but it’s overwhelmingly amazing that everyone’s keep trucking on for us. . Nearly 50% in just 2weeks. There are no words for how grateful we are. 💗

    Share this update to help us raise more

  • Joanna Jackson-Matthew (Graces mum)1 month ago
    Joanna Jackson-Matthew (Graces mum)

    Joanna Jackson-Matthew (Graces mum)

    1 month ago
    Update from the Page owner

    Share this update to help us raise more

2 months ago

Joanna Jackson-Matthew (Graces mum) started crowdfunding

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Page last updated on: 6/25/2019 06.21

Supporters

299

  • Velislava Raykova

    Velislava Raykova

    Jun 25, 2019

    £20.00

  • Anonymous

    Anonymous

    Jun 24, 2019

    Sending you much love. Praying for you all. xx

  • Anonymous

    Anonymous

    Jun 24, 2019

    Good luck x

  • Adam Vickers

    Adam Vickers

    Jun 24, 2019

    £25.00

  • Anonymous

    Anonymous

    Jun 23, 2019

    Picked up your flyer at the Pantiles. Really hope you reach your target and Grace can get the right treatment.

    £10.00

  • Judi Sloman

    Judi Sloman

    Jun 23, 2019

    Hoping Grace gets the help she so desperately needs.Sending lots of very best wishes to you all.From a colleague of Joe xx

    £40.00

  • Bunty Perrett

    Bunty Perrett

    Jun 23, 2019

    Sending love from Rosanna xx

    £30.00

Joanna Jackson-Matthew (Graces mum)

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About the fundraiser
Joanna Jackson-Matthew (Graces mum)

Joanna Jackson-Matthew (Graces mum)

Tunbridge Wells Kent. UK

Grace Daisy Jackson-Matthew is one of three sisters. Grace age 14, Anna-Maria age 11 and Nina age 10. We live in Tunbridge Wells in the South of England UK. Grace hasn't attended school since July 2018 due to the intense pain she experiences because of her Vascular conditions.

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