I'm raising £3,000 for a funeral/memorial for Hugo, he was born with a rare condition called Charge syndrome and part of that condition was he had a heart defect amongst other things

Hugo has overcome heart surgeries, countless hospital stays too many to count but he just thrived and met many milestone we were told he would not reach

Hugo was deaf and partially sighted, non verbal but my goodness he was so amazing and clever and cheeky. You would hear Hugo before you saw him and he would light up a room when he walked in.

Hugo was full of life , he played football and did park run every sunday with his amazing mummy and siblings. He loved to be on our ice cream van and customers loved him. He was simply our super Hugo and was loved by so many.

His mummy claire my daughter has cared for Hugo for 15 years and gave him the most full and amazing life, but no parent would think that they would lose their child.

I would like to raise as much money as we could to help his mummy, daddy and his 4 siblings to give Hugo the biggest Hugo party and to ease the financial burden.

Any money left over will be used to help his siblings .

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