26%
£8,542raised of £32,000 target by 100 supporters

Weʼre raising £32,000 to Get Lauren to Germany 🇩🇪

Location
Durham, United Kingdom

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Story

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As some of you lovely people will know, and many of you won’t, after the recent bombshell news of Lauren’s potential VBT surgery at Shriners hospital in Philadelphia being declined right at the finishing line due to the possibility of the surgery making her shoulders uneven, We really didn’t want to give up hope so we desperately went on another search trying to find another specialist to possibly see Lauren and confirm that the Vertebral Body Tethering would not be suitable for Lauren’s structure. Miraculously we found a clinic in Simmerath, Germany who had in its residence a Shriners trained VBT specialist named Dr. Per Trobisch. After overcoming some quite difficult language barriers, We finally managed to have a chat over the telephone with Dr. Trobisch, he briefly looked and Lauren’s past X rays and he didn’t want to say anymore over the phone, he wanted to see her in clinic. Without going on and on, at 12.00 on the morning of January 12th, after a plane, bus and cab journey over to Germany, we were having our Consultation with Dr. Trobisch. After a quick meet and greet, we were in his office probably no more than 5 minutes before we were sent downstairs to have a number of new X rays done on Lauren so he could read them on a system he was familiar with, as soon as we came out of radiology and got back to his office he was already reading them and measuring Lauren’s curves to see what the next step was. After a brief chat, and a very thorough explanation of what he was seeing, he told us that Lauren had 3 curves, for the last 10 years we thought there was 2! And Lauren being Lauren, 9 out 10 patients have the curve on the right, so Lauren unknowingly decided to have a left curve! Which unfortunately comes with a complication. A left curve lies behind the Aorta, a main artery. Dr. Trobisch explained this was not the end of the world by any means but makes the procedure a little bit trickier as he has to move the Aorta forward to fix the components into Lauren’s vertebrae then allow it back in to place. But there was only one curve he was interested in, Lauren’s major curve which is central in her spine at 55 degrees. The small curves at the top and bottom of her spine he did not see as a cause for concern as he is quite confident that if the major curve is tethered that they will correct themselves in time. At the end of the Consultation he suggested we go home and have a think about what we would like to do, I as politely as I could at the time stopped him in his tracks and asked him if he was saying that he would do the surgery?? To which he said he would more than happy to! So I said I think I speak for both Joanne, Lauren and myself in saying that it’s a resounding ‘Yes from us’! We would have travelled to the ends of the earth to find someone as talented as Dr. Trobisch to operate on Lauren’s spinal correction, he teaches students this procedure at the University in Aachen, Germany so I don’t think we could have possibly found anyone more suitable however far we travelled. Dr. Trobisch is treating this as a single curve operation, and he is not personally taking any fee for his work, all of the cost is for the hospital, it’s staff and the components for Lauren’s vertebrae. The total cost for the operation is €35,000, or £32,000 in pound sterling. Originally the money we we’re trying to raise for the Philadelphia trip was some medical expenses, travel, accommodation, food etc, but now, although we are needing to raise quite a lot more, it is purely for Lauren’s surgery costs. This whole situation since it began has been one really big rollercoaster and to find someone like Dr. Trobisch to agree to do the surgery is nothing short of a miracle! I speak for everyone underneath our roof when I say we can not thank everyone enough for what they’ve done already and are continuing to do, this experience has certainly changed the way we are as a family, and even though we are people who really love to help anyone where we can, when this is over we fully intend to help people who need it a whole lot more! Thank you so much to everyone involved. The Rennie’s. Xxx

THIS IS LAUREN'S STORY

Our daughter Lauren is 12 years old, and from the day she was diagnosed with scoliosis at just 14 month old, she's wished for nothing more than to look the same as all of the other children and being as active and as free as a 12 year old should be.

She was born with a curved spine which was noticed at 14 months old, and from then she has had to frequently visit hospital every 3 months where she had to be sedated and a full upper body plaster cast was placed on her torso to support the back, this continued until she was 4 years old. She then had removable casts until the age of 8 years, but still had to be worn all day everyday, only to be briefly removed for her to wash. From the day that Lauren's diagnosis was confirmed, we always knew she was going to need an operation (spine fusion with metal rods) and seldom has a day gone by where we havent thought and worried about the operation day, as we know it is a very invasive and painful operation with a long recovery time and restricts movement.

Lauren is a wonderful, joyful, caring girl who always puts others first. She has always been brave & resilient and has faced whatever came her way and never complained. Lauren says " I am extremely grateful to anyone who can help me complete the last part of my journey

This is where we ask everyone....Please help us make our daughters dreams come true, as she puts it. "FIX MY WONKY BACK"

All or any donations are very much appreciated, thank you for taking the time to read Lauren's Story

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Updates

4

  • Joanne Rennie3 months ago
    Joanne Rennie

    Joanne Rennie

    3 months ago

    Lauren was refused from the Shriners hospital as they said her shoulders would not be straight. After we got over the shock we applied to Germany they have asked us to go over for a consultation in January. We still don’t have a definite yes but we are hopeful. The cost will be more as the operation is 33,000 pounds however we are willing to try to raise the funds if she is excepted.

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  • Joanne Rennie4 months ago
    Joanne Rennie

    Joanne Rennie

    4 months ago

    First of all I would like to thank everybody for there support and generosity! The zumbathon was a huge success with massive thanks to Sarah madden and Mellisa Holmes for leading it, thanks to everyone who took part ,baked, helpled on the stalls and just showed up. Thanks to Robbie for collecting for us too. Without you all we could not have done it. we have made £2,619.10 from the zumbathon which is a magnificent achievement. A huge thank you to everyone. Xx

    Update from the Page owner

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  • Joanne Rennie5 months ago
    Joanne Rennie

    Joanne Rennie

    5 months ago

    Thanks for all your donations we are so overwhelmed with the support we are reciving. We have a zumbathon coming up on the 8th of October and we are looking forward to seeing everybody there. We are still waiting for word from Shriners hospital. Thanks again to everyone. Xx

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6 months ago

Joanne Rennie started crowdfunding

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Supporters

100

  • Ann Kelly

    Ann Kelly

    Feb 22, 2018

    Good luck Lauren x

  • Anonymous

    Anonymous

    Feb 22, 2018

    Just seen the story on Look North. Best of luck raising the money & with the operation

    £20.00

  • Anonymous

    Anonymous

    Feb 22, 2018

    Just heard Lauren's story on TV. Hope all goes well with the surgery. God Bless x

    £30.00

  • Anonymous

    Anonymous

    Feb 22, 2018

    SENDING MUCH WRAP AROUND SUPPORT. WILL FOLLOW YOUR PROGRESS WITH INTEREST.

    £50.00

  • James

    James

    Feb 22, 2018

    Just seen Look North. It's disgusting that you have to go to Germany. I know this isn't much but hope it helps. Take care and all the best 😀

    £10.00

  • David Rowley

    David Rowley

    Feb 22, 2018

    Good luck and hope it all goes well! Jiil & Dave.

    £20.00

  • Anonymous

    Anonymous

    Feb 22, 2018

    Good luck for your surgery and your future x

    £10.00

About the fundraiser
Joanne Rennie

Joanne Rennie

Durham, United Kingdom

At the fresh young age of 14 months old, our beautiful daughter Lauren was diagnosed with a curvature of the spine called scoliosis. Unbeknown to us, although we knew of the condition of scoliosis, what we didn't know was for an infant to have it was incredibly rare!

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