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Eleanor Sexton

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96%
£20,289
raised of £21,000 target by 432 supporters

Weʼre raising £21,000 to support our family and ease financial strain whilst Jody undergoes treatment for a grade 4 Glioblastoma Multiforme (brain tumour)

Southsea, Hampshire

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Story

Edited to add: since writing this, Jody was officially diagnosed with a Grade 4 Glioblastoma Multiforme at the end of January. He has undergone an awake craniotomy, from which he recovered very well, however after testing the mass they removed, the team at Southampton General Hospital determined that it was a malignant mass, and an extremely aggressive brain tumour type. The very same sort I lost my late father to when i was in my early twenties. Jody has completed 6 weeks of targeted radiotherapy and chemotherapy, with a month’s break, and is just beginning 6 months of chemotherapy cycles. The majority of his care will be palliative.

—————————————————————————————— On New Years Eve 2019, after months of ongoing and increasingly alarming symptoms which we couldn‘t quite explain, my 43 year old husband Jody was diagnosed with a brain tumour.

So far the information we have, is that it‘s an Oligodendroglioma in the frontal lobe of his brain. The evidence suggests it’s a Grade 2, which thankfully is the non-aggressive, slow growing sort. The pensioner of the brain tumour world, if you will. We’re also fairly sure it’s benign, although this probably won’t be confirmed until it is biopsied.

The current plan is that he is taking a cocktail of steroids to reduce the inflammation around the mass, and will then have surgery to hopefully fully remove it within the next two weeks.

The mass itself is measuring at approximately 5cm - slightly bigger than a golf ball. It‘s also showing signs of calcification, which led the doctor to believe it may have been growing very slowly for approximately 20 years. Despite this, the symptoms have been ever changing, from partial temporary paralysis, to seizures, to stroke-like episodes, and blinding headaches and numbness.

So far we know very little about the expected recovery period, but at the present time, he is not allowed to drive, and is signed off from work indefinitely. Needless to say this has been a huge shock to us all, and has rocked our little family. We’re unsure of the outcome, and what sort of symptoms he may experience long-term.

Reaching out and asking for help is not in the nature of Jody and I, but I suppose if you’re ever going to cash in those favours, now is the time.

Indio (who I’m sure all will know is our wild, Alice In Chains loving 3 year old) is very resilient, as children are, but is naturally aware that his routines are not quite as normal, and he’s spending time with friends and family who he may typically not be used to.

If I can somehow lighten the load for Jody - and the financial pressure which I know he’s feeling a little by being the sole earner in our Sexton trio, then I suppose it’s one less concern for him.

Until then, I’ll do my best to look after him, and update here with any new information. My skills are unfortunately limited, and I think he’d rather I didn’t attempt the surgery myself with a junior hacksaw and a teaspoon. Other than that, I’ve got him covered.

Thanks for reading, Elle - wife, secretary and nurse of Jody

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Updates

18

  • Eleanor Sexton15 days ago
    Eleanor Sexton

    Eleanor Sexton

    15 days ago

    Just a brief update; Jody’s finished the first of the upcoming 6 cycles of chemo he’ll be undergoing (5 days on, 23 days off, before starting again) He’s had a few bike rides to clear the cobwebs, and thankfully there haven’t been any particular symptoms aside from aching bones and some pretty intense fatigue. As always, saying ‘thank you’ doesn’t truly express to any extent how grateful we feel to have such exceptional people in our lives, supporting us in myriad ways. But we are filled with so much gratitude. Stay safe all x

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  • Eleanor Sexton24 days ago
    Eleanor Sexton

    Eleanor Sexton

    24 days ago

    Today we heard that Jody’s liver function has returned to normal, so he can begin his 6 months of chemotherapy cycles on Friday. He’ll take chemo for 5 days, at home, then have a 23 day break, and he’ll repeat this for the next 6 months (assuming his liver doesn’t do anything strange again). He won’t have an MRI to check progression until around July, so we hope the radiotherapy and previous chemo has been useful. We’ve gone a bit quiet here, but given the current climate there’s not an awful lot to say. We hope everyone is safe and well x

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  • Eleanor Sexton2 months ago
    Eleanor Sexton

    Eleanor Sexton

    2 months ago

    Today was Jody’s last radiotherapy session. He had to stop the chemotherapy a week ago because his blood tests showed his liver wasn’t coping. Bit of a kick in the teeth, but hopefully it’ll have recovered enough in 4-6 weeks for him to have the cycles of chemo his team have planned. I packed him off this morning with a small token of gratitude, made by the wonderful Jenna of forcedtobefussy.co.uk - Who doesn’t love cake? So, no more hospital trips for a month or so now. Which is a relief. Hope everyone’s staying safe & healthy X

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5 months ago

Eleanor Sexton started crowdfunding

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Page last updated on: 6/5/2020 09.57

Supporters

432

  • Anonymous

    Anonymous

    Jun 5, 2020

    £20.00

  • Anonymous

    Anonymous

    Jun 4, 2020

  • Anonymous

    Anonymous

    Jun 3, 2020

    Totally forgot to send this through. So sorry. Just catching up on accounts and realised I'd left a spreadsheet note for the raffle tickets. BIG LOVE AS AWAYS XXXX

  • Anonymous

    Anonymous

    May 27, 2020

    ☺️💐

  • Alexandria Valentino

    Alexandria Valentino

    May 27, 2020

    £40.00

  • Eilidh

    Eilidh

    May 26, 2020

    £20.00

  • Anonymous

    Anonymous

    May 25, 2020

Eleanor Sexton

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Eleanor Sexton

Eleanor Sexton

Southsea, Hampshire

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