Weʼve raised £290 to help fund treatment not available to colleague Vicky Trusch on the NHS. I am running the Asics Greater Manchester Marathon on 08.04.18.
- Manchester, UK
- Funded on Saturday, 12th May 2018
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The page owner is responsible for the distribution of funds raised.
Please see Vicky's story below:
I am a mum of two young children, Poppy (2) & Alfie (1). I was diagnosed with Osteosarcoma (OS), a type of bone cancer, on my rib, age 33 in Sept 17. It is a very aggressive rare cancer that often spreads to other parts of the body. It is believed the cancer cells have already spread in about 80% of patients at diagnosis but are so small they can’t be seen on scans. With a high recurrence rate, as time passes small cells that can’t be seen initially would eventually grow and be detected as a relapse.
- 10 weeks intensive chemo
- 22 Dec surgery to remove 3 ribs
- Just begun a further 18 weeks of chemo
In 30 years the only medical advance for OS is the development & approved licence of the drug Mepact for 2-30 year olds - a targeted cancer drug boosting the immune system to kill cancer cells & prevent recurrence. In the trial there was an improvement in the number of patients alive & well 6 years after treatment compared to those who didn’t have Mepact. As OS primarily occurs in children & young adults, the trial only included people between 2-30 years.
Approved by NICE in 2011, the NHS now offer Mepact as an additional drug to patients post-surgery within the trial age range. NICE recommended Mepact because more people are cured if they have Mepact as well as the standard chemo, with cost justified by benefits provided.
As I was age 33 at diagnosis, NHS have declined funding for this additional drug. The cost to self-fund is £103,227. My Oncologist believes I would benefit from this treatment. If I were age 30 at diagnosis it would have been offered on the NHS.
I have continued love & support from family & friends and remain positive. I aim to raise the funds required to be treated with this drug & improve my chances of survival and preventing relapse. With a young family, I hope for a long future to watch them grow. I would be forever grateful for help reaching this goal.
- 16 days ago
John Higgins, Principal of Ash Hill Academy16 days ago
I am pleased to say that along with private contributions, we have exceeded our target and raised £557.00 towards this great cause. Wishing Vicky a positive outcome for the future, with love from John Higgins and staff of Ash Hill Academy.
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John Higgins, Principal of Ash Hill Academy started crowdfunding
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Apr 24, 2018
Apr 9, 2018
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Mar 28, 2018
Running for such a good cause. Good luck.
Mar 26, 2018
Good luck John hope you beat your personal best time as well as raising money for a great cause x
Mar 21, 2018
Go PapaJ x
Mar 20, 2018
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About the fundraiser
John Higgins, Principal of Ash Hill Academy
I am running the 'Asics Greater Manchester Marathon' on Sunday 8th April 2018 to help raise money towards funding treatment not available to colleague Vicky Trusch on the NHS. All sponsorship will be greatly appreciated and go towards the ‘Vicky Trusch Beat Bone Cancer Fund’.
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