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Weʼre raising £5,000 to A charity Deaf to Menieres. Dedicated to increasing research funding into Meniere's and ensuring effective treatment for all
- Bicester, UK
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Story
We are looking to significantly improve treatment for more than 100,000 sufferers of Meniere's disease in the UK.
We are looking to:
Set up a UK Centre of Excellence for Meniere’s
Our aim is to set up a UK Centre of Excellence for Meniere’s to carry out research and provide clinical oversight
We are looking to establish a UK based Centre of Excellence for Meniere’s.
A network of Medical Advisors and Advocates
We are looking for support from medical professionals to establish a network of Meniere’s Medical Advisors and Advocates. They would need to be supportive of genomics and autoimmune research into cause and treatment
Education Programmes
For each of the identified variants of Meniere’s we want to ensure consistent treatment programmes for Meniere’s sufferers.
Developing education programmes encompassing medical schools, CPD modules , seminars, and conferences.
Donating and Raising Funds for Research
Currently we are donating to the Otology & Neurotology- Genomics of vestibular disorders led by Jose Antonio Lopez Escamez who are heavily engaged in Genomic research.
We are raising as much funding as we can to donate to their ground breaking research and development of stem cell treatments for Meniere’s.
I hope you will help us by registering and donating to our charity.
If you want to know more about us and Meniere's check out our website:
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Updates
5
3 months agoJohn Ingram
3 months ago
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- 3 months ago
John Ingram
3 months agoWell we did the run this morning and raised £232 which was not a bad effort for a first time. We all ran well too after all the training. times were: David Ingram 37:34 John Ingram 1:04:34 Diana Shelton 1:05:16 David did a PB and my time was a Meniere's PB, the first 10k I've done since I got Meniere's. So we were all happy with that 😁😁😁👍
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- 3 months ago
John Ingram
3 months agoTraining Camp Update - Thursday 10th May We preceded the run with a mountain climb up to the highest point here, which was 2 hours up and down. Then pretty much straight after did the training run itself. Trying to show the steepness of the hills in the pictures. ---------------------------------------------------------------------------------------------------- Temperature 23c, Humidity 66%, UV 8, Route elevation - 186 - steep hills up and down. Distance 6.27k , Time 48:20
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John Ingram started crowdfunding
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Supporters
7
Anonymous
May 11, 2018
Good luck John (and Diana) - hope all your training this week helps you get a new PB!! Frank & Boo xx
£50.00
Anonymous
May 10, 2018
It is wonderful to know there is more awareness now about Ménière's disease. I started at the age of 11, I am now 52. It has effected my life massively. Good luck and many thanks.
Julieann Wallace
May 6, 2018
#find a cure #meniereswarrior #takemyhand
Deborah Aust
May 4, 2018
£10.00
Brenda Wood
May 4, 2018
Good luck hope you reach your target.
£30.00
Diana Shelton
May 3, 2018
Good luck John.
£30.00
Jasmin Bugden
Apr 29, 2018
£100.00
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About the fundraiser
John Ingram
Bicester, UK
Deaf to Meniere's is a charity dedicated to increase research into Meniere's disease and secure effective treatment for all sufferers.
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