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Johnny Rivo raised £14,625 from 296 supporters

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Closed 04/11/2018

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£14,625raised of £60,000 target by 296 supporters

    Weʼve raised £14,625 to to help Johnny Rivo (John Rivett) receive effective cancer treatment known as immunotherapy, that is not currently available on the NHS.

    London, UK
    Funded on Sunday, 4th November 2018

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    Story

    So it was a year ago I got told the news about my cancer. It was tough to take but I had an amazing girlfriend, family, and friends to help me when I found times a bit too much. I went through all the processes that included losing most of my large colon, 6 months of chemo and generally what always gets forgotten. The psychological effects that dealing with your mortality daily entails. You kind of just switch off from it and motor on. Well, I did anyway. Strange to say but I relished the challenge some days. Must be a Kent coastal thing. Never back down. So 4 months into remission and I was hit like a sledgehammer. The cancer is back. Fuck me, that's a bitter pill to swallow. Devastated, angry, sad, confused, empty........I felt it all. You know what the weird thing is. I felt like I let everyone down that had to go on this journey with me. You think shit, are these people going to be able to deal with this a 2nd time round? Needless to say that the people who know have been great and shown real resolve and positivity in such a trying turn of events.

    Basically, I have a genetic condition which is why I got cancer so relatively young. It is called Lynch Syndrome and it is part of the genetic family that is mismatch repair. What it means is you are at a very high risk or getting colon cancer at a young age and slightly higher risk of other cancers. As a result, my cancer is quite different from the general population. It means some treatments just don't work in the same way.

    This is where immunotherapy comes in. For some reason, this has a considerably higher success rate, than for people without the genetic condition. They don't fully understand the reasons hence why the trials, that have been taking place for the past two years with good success. 62% in keeping people in remission. This is good in the world of cancer statistics! Problem is, paid trials are no longer available. And luck has it, my more generous list of options is no longer available. At £8000 per cycle, it's going to be a real challenge.

    Cue you beautiful people. I know people don't have loads of cash so I just ask that you share the shit out of this and get people to just keep sharing. The sheer numbers of you lot will help get to this goal. If you have any suggestions to raise money I am happy to receive them also.

    I will set up a Facebook page for this too, as I want people to come to me for any advice or help, that have cancer / beaten cancer / with a person who has cancer / has a genetic related cancer etc. I have gained quite a lot of knowledge in the past year and 5 months so would be more than happy to help others. Just wish I could study this hard for other sections of my life! You can also follow progress. A bit morbid for some I know. That's it for now : )

    Thanks and love to you all.

    Johnny xxx

    THIS IS THE FACEBOOK PAGE

    Resolve - Lynch Syndrome Cancer Support

    Updates

    7

    • Johnny Rivo8 months ago
      Johnny Rivo

      Johnny Rivo

      8 months ago

      It's been a while since an update. Needed to take a break from it all. Thanks so much for your continued support. An Update. I will be having a scan on the 13th of August after my 4th treatment to see if it has been effective so far. The Dr in charge is feeling very confident at looking how I have progressed which it massively reassuring. ALSO!!! If the scan shows that there has been a positive change there is a very strong chance that the rest of the treatment will be paid for. This would be a huge relief. Fingers crossed. Thanks again xxx

      Update from the Page owner

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    • Johnny Rivo9 months ago
      Johnny Rivo

      Johnny Rivo

      9 months ago

      Thanks to all that came to SUNDAY [FUND]DAY. Was a real success. Can see the photos here >>> https://www.facebook.com/jrivo/media_set?set=a.10157923516029466&type=3 Thanks Jx

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    • Johnny Rivo9 months ago
      Johnny Rivo

      Johnny Rivo

      9 months ago

      Event Tomorrow. Lots of great stuff going on. Jx https://www.facebook.com/events/585329838533576/?ti=icl

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    1 year ago

    Johnny Rivo started crowdfunding

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    Page last updated on: 10/8/2018 10.20

    Supporters

    296

    • Naomi Honour

      Naomi Honour

      Oct 8, 2018

      Brilliant news that the immunotherapy is working! Take Care Xx

      £50.00

    • Lisa McMillan

      Lisa McMillan

      Oct 2, 2018

      This is from Jennie Leadbetter :0)Jennie recently bought a signed David Attenborough book which was a donation by Dipti!! Thank you both!! Xx

      £100.00

    • Anonymous

      Anonymous

      Oct 1, 2018

      £20.00

    • Andy Jenkin

      Andy Jenkin

      Oct 1, 2018

      £20.00

    • Asia Wu

      Asia Wu

      Aug 26, 2018

      good luck man! x

      £50.00

    • Julia honour

      Julia honour

      Aug 24, 2018

      Fight the good fight John wishing you well you can do this lots of love xx

      £50.00

    • Kat Day

      Kat Day

      Aug 24, 2018

      £30.00

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    About Crowdfunding
    About the fundraiser
    Johnny Rivo

    Johnny Rivo

    London, UK

    Just a guy trying to live life in the best way possible.

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