Your friends are fundraising. Don't miss out, opt in.

We did it!

Jorja Emerson raised £7,613 from 360 supporters

or

Start your own crowdfunding page

Closed 13/09/2017

3%
£7,613
raised of £200,000 target by 360 supporters

    Weʼve raised £7,613 to Help save our 17 month old daughter Jorja Emerson she needs a second opinion and treatment for her uncontrollable epilepsy from experts.

    Belfast, United Kingdom
    Funded on Wednesday, 13th September 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Jorja is a 17 month old baby girl, born with a rare chromosome disorder - 1q43q44 deletion. Part of this condition includes severe epilepsy.
    Jorja has been extremely unwell over the last 6 weeks with her epilepsy, with recently being admitted to PICU for the 2nd time in the past week.

    Jorja is now back on the ward in the Ulster Hospital for monitoring.

    The Royal Hospital is now of the opinion that Jorja's brain is decaying because of her chromosome deletion, and that we do not have much time left with Jorja. They say that there is nothing more that they can do and that her epilepsy is uncontrollable.

    We, Jorja’s Parents, her family circle, our 1q4 support group, Medical Professionals, friends and strangers DO NOT believe that Jorja is dying.
    We believe that the white matter in Jorja’s brain is not decaying. We believe that there are a number of possible causes for her white matter loss - including prolonged seizures, epileptic drugs, or even just part of Jorja’s brain malformation, which would mean that she has had this from birth.

    We believe that we can treat Jorja’s epilepsy. To simply walk away and say that we tried our best is just not an option that we are willing to accept!

    Jorja’s Last Hope is to travel to America, where there are stage 4 epilepsy units, which we do not have here in the UK. They would have experience with Jorja’s specific chromosome deletion, they would have an expert epileptologist, along with genetic specialists, who can treat Jorja’s epilepsy and not just cast her to the side to die as if she is a lost cause.

    Any one of her seizures could kill her at any minute - time is against us!

    I beg you as Jorja’s daddy, who loves his little girl more than anything, for the opportunity to save her life. This is Jorja's last hope.

    Go to Jorja's Last Hope on Facebook for more information.

    Updates

    1

    • Jorja Emerson3 years ago
      Jorja Emerson

      Jorja Emerson

      3 years ago

      Jorja, is doing well since coming out of intensive care and is now at the Ulster for monitoring. Unfortunately this can change at any minute and Jorja can go back into a life threatening status seizure. The hospital has written Jorja off and say there is nothing more they can do! I have researched and researched and it has become clear that America is the only answer for Jorja! They have the expertise and equipment and knowledge on her Chromosome deletion - we will only waste money and time in England. They can save Jorja's life!

      Share this update to help us raise more

    3 years ago

    Jorja Emerson started crowdfunding

    Leave a message of support

    Page last updated on: 8/28/2017 19.01

    Supporters

    360

    • Great Aunt Marie

      Great Aunt Marie

      Aug 28, 2017

      Hope this small donation helps in some way.

      £50.00

    • jack h

      jack h

      Aug 26, 2017

      You deserve a quality of life

      £20.00

    • Anonymous

      Anonymous

      Aug 23, 2017

      Hope use get enough money soon. Prayers and support for your whole family. Good luck

    • Anonymous

      Anonymous

      Aug 21, 2017

      £20.00

    • Anonymous

      Anonymous

      Aug 21, 2017

      Hope your health improves

      £50.00

    • Anonymous

      Anonymous

      Aug 21, 2017

      £20.00

    • Anonymous

      Anonymous

      Aug 21, 2017

    Great people make things happen

    Do you know anyone in need or maybe want to help a local community cause?

    Create you own page and donʼt let that cause go unfunded!

    About Crowdfunding
    About the fundraiser
    Jorja Emerson

    Jorja Emerson

    Belfast, United Kingdom

    I am Jorja's daddy, desperately seeking help to get my baby girl back to her normal, happy, healthy self.

    Report this Page