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Joshua Barnfather

Joshua Barnfather is crowdfunding

0%
£71,277
raised of £100,000 target by 1138 supporters

Weʼre raising £100,000 to help fund life-extending cancer treatment.

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Who am I?

I'm Joshua Barnfather. I'm 31 years old and I was born with a rare skin condition, Xeroderma Pigmentosum.

This genetic disorder means my skin has a reduced ability to repair DNA damage, specifically that caused by Ultra Violet light.

For my whole life, I've tried to avoid UV light. I've covered up during daylight hours, stayed indoors wherever possible and adjusted my life and environment to protect my skin and overall health.

Despite the best efforts of me and my family, over the course of my life I have developed several skin cancers that had been successfully treated without life-threatening impact; until now.

In February 2017, I was diagnosed with angiosarcoma, a cancer affecting the inner lining of the blood vessels.

I have had many unsuccessful attempts at face and lung surgery, chemotherapy, trial drugs and lymph node radiotherapy to tackle my cancer. I have also had long hospital stays battling serious infections and severe heart complications. After these experiences, standardised treatments have now been deemed ineffective for my case.

How your money will help

Because of my unique characteristics as a Xeroderma Pigmentosum patient, specialists believe that immunotherapy cancer treatment will be useful for me. However, this is not readily available on the NHS for my case and could cost around £100,000 per year, although there is a lot of uncertainty surrounding this.

Your generous contributions will help to fund this treatment and the associated care. Excess funds will be donated to a cause that encourages the same personalised approach to cancer treatment that is proving beneficial to me.

No matter how small, I am grateful for all contributions.

Thank you for taking the time to read my story.

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Updates

17

  • Joshua Barnfather2 months ago
    Joshua Barnfather

    Joshua Barnfather

    2 months ago

    Hi all, just wanted to let you know that a research paper on my case has just been published. It's a really interesting read and shows what the funds raised has contributed to achieving. You can find it here: http://molecularcasestudies.cshlp.org/content/5/5/a004408.full.pdf

    Share this update to help us raise more

  • Joshua Barnfather3 months ago
    Joshua Barnfather

    Joshua Barnfather

    3 months ago

    Hi all, just a quick update to let you know that I've recently got more scan results that show the treatment is still working great. Thanks for the continued support :)

    Share this update to help us raise more

  • Joshua Barnfather5 months ago
    Joshua Barnfather

    Joshua Barnfather

    5 months ago

    Hi all, check out “War in the Blood” on BBC 2 at 9PM tonight. It’s about trialling immunotherapy cancer treatments on patients that haven’t responded to standard options. From what I’ve read, these patients have completely different cancers to me and the specific immunotherapies being tested are also different to mine. However, I’m wondering if there might be parts of their stories similar to my own... https://www.ucl.ac.uk/news/2019/jul/war-blood-film-about-car-t-cell-therapy

    Share this update to help us raise more

1 year ago

Joshua Barnfather started crowdfunding

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Page last updated on: 12/7/2019 21.50

Supporters

1138

  • Anonymous

    Anonymous

    Dec 7, 2019

    Seek Jesus ask him to show you he is real god bless you

    £20.00

  • Amanda Clayton

    Amanda Clayton

    Dec 2, 2019

    Today's kindness challenge: support a charity or cause close to my heart. Cancer has affected my friends and family. I searched just giving and found you nearby. Good luck x

    £10.00

  • Ryehill Building Supplies

    Ryehill Building Supplies

    Nov 20, 2019

    £5.00

  • Anonymous

    Anonymous

    Nov 1, 2019

  • Jill Carr

    Jill Carr

    Oct 20, 2019

    Great to hear that you are doing so well Josh. Best wishes, love Jill xx

    £100.00

  • Anonymous

    Anonymous

    Oct 17, 2019

  • Anonymous

    Anonymous

    Oct 17, 2019

    Money raised from #FootyForJosh2. Hope the treatment is still going well, all the best mate!

    £270.00

Joshua Barnfather

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About the fundraiser
Joshua Barnfather

Joshua Barnfather

Hull, UK

I'm Joshua Barnfather and I have a rare skin condition, Xeroderma Pigmentosum. In Feb 2017, this caused me to develop angiosarcoma cancer. Since then, it spread from my face to my lymph nodes, scalp, bones, liver, lungs (and their outer lining) and the outer lining of my heart.

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