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£64,339raised of £100,000 target by 1077 supporters

Weʼre raising £100,000 to help fund life-extending cancer treatment.

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Who am I?

I'm Joshua Barnfather. I'm 31 years old and I was born with a rare skin condition, Xeroderma Pigmentosum.

This genetic disorder means my skin has a reduced ability to repair DNA damage, specifically that caused by Ultra Violet light.

For my whole life, I've tried to avoid UV light. I've covered up during daylight hours, stayed indoors wherever possible and adjusted my life and environment to protect my skin and my overall health.

Despite the best efforts of me and my family, over the course of my life I have developed several skin cancers that had been successfully treated without life-threatening impact; until now.

In February 2017, I was diagnosed with angiosarcoma, a cancer affecting the inner lining of the blood vessels.

I have had many unsuccessful attempts at face and lung surgery, chemotherapy, trial drugs and lymph node radiotherapy to tackle my cancer. I have also had long hospital stays battling serious infections and severe heart complications. After these experiences, standardised treatments have now been deemed ineffective for my case.

How your money will help

Because of my unique characteristics as a Xeroderma Pigmentosum patient, specialists believe that the immunotherapy treatment, Pembrolizumab, could extend my life. However, this is not readily available on the NHS for angiosarcoma patients and costs around £100,000 per year.

Your generous contributions will help to fund these drugs, their administration and associated care.

No matter how small, I am grateful for all contributions to fund my treatment.

Thank you for taking the time to read my story.

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Updates

12

  • Joshua Barnfather8 days ago
    Joshua Barnfather

    Joshua Barnfather

    8 days ago

    Hi all, I have now had 5 sessions of immunotherapy treatment. Progress has recently been assessed with scans and the results were amazing. A few months ago the spread of my cancer was extensive to say the least. At this time, the cancer in my face, scalp, bones and lungs has now resolved. In my lymph nodes, liver, lung lining and heart lining it has reduced dramatically, with only small amounts remaining. I will now continue with more immunotherapy and hope the positive progress continues. Thank you all for making this happen :) Josh

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  • Joshua Barnfather2 months ago
    Joshua Barnfather

    Joshua Barnfather

    2 months ago

    Hi everyone, just on my way to London for a hospital appointment before my 3rd cycle of immunotherapy treatment in between Christmas and New Year. This is excellent progress after spending some time being unwell in hospital. Just wanted to thank you all again for the ongoing support and fundraising efforts that make it all possible :)

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  • Joshua Barnfather3 months ago
    Joshua Barnfather

    Joshua Barnfather

    3 months ago

    BIG NEWS!!! I’ve started immunotherapy and you all made it happen :) I’d gone to hospital nearly 2 weeks ago for interim chemo during my lung surgery and radiotherapy recovery. This couldn’t start because of a chest infection, caused by the cancer, so I had to have an ongoing hospital stay. Docs soon decided I’d recovered enough to start immunotherapy! This meant I could pay with funds raised and get started. This costs around £10K everyday 21 days. I hope we can keep fund raising so I can fund further cycles. I can’t thank you all enough.

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6 months ago

Joshua Barnfather started crowdfunding

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Page last updated on: 2/17/2019 19.57

Supporters

1077

  • Anonymous

    Anonymous

    Feb 17, 2019

  • Anonymous

    Anonymous

    Feb 16, 2019

    Continued good luck with your fund raising Josh. Martin Fisher.

    £30.00

  • Jill Carr

    Jill Carr

    Feb 14, 2019

    Wonderful news Josh! So happy for you and your family x x

    £100.00

  • Neil Gibson

    Neil Gibson

    Feb 12, 2019

    C4DI Valentines Raffle!

    £5.00

  • Izzie Glazzard

    Izzie Glazzard

    Feb 12, 2019

    £5.00

  • Tom H

    Tom H

    Feb 12, 2019

    Ticket Donation

    £5.00

  • James

    James

    Feb 12, 2019

Joshua Barnfather

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About the fundraiser
Joshua Barnfather

Joshua Barnfather

Hull, UK

I'm Joshua Barnfather and I have a rare skin condition, Xeroderma Pigmentosum. In Feb 2017, this caused me to develop angiosarcoma cancer. Since then, it spread from my face to my lymph nodes, scalp, bones, liver, lungs (and their outer lining) and the outer lining of my heart.

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