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Joshua Barnfather raised £71,284.22 from 1140 supporters

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Closed 11/02/2020

71%
£71,284
raised of £100,000 target by 1140 supporters

    Weʼve raised £71,284 to help fund life-extending cancer treatment.

    Hull, UK
    Funded on Tuesday, 11th February 2020

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Who am I?

    I'm Joshua Barnfather. I'm 31 years old and I was born with a rare skin condition, Xeroderma Pigmentosum.

    This genetic disorder means my skin has a reduced ability to repair DNA damage, specifically that caused by Ultra Violet light.

    For my whole life, I've tried to avoid UV light. I've covered up during daylight hours, stayed indoors wherever possible and adjusted my life and environment to protect my skin and overall health.

    Despite the best efforts of me and my family, over the course of my life I have developed several skin cancers that had been successfully treated without life-threatening impact; until now.

    In February 2017, I was diagnosed with angiosarcoma, a cancer affecting the inner lining of the blood vessels.

    I have had many unsuccessful attempts at face and lung surgery, chemotherapy, trial drugs and lymph node radiotherapy to tackle my cancer. I have also had long hospital stays battling serious infections and severe heart complications. After these experiences, standardised treatments have now been deemed ineffective for my case.

    How your money will help

    Because of my unique characteristics as a Xeroderma Pigmentosum patient, specialists believe that immunotherapy cancer treatment will be useful for me. However, this is not readily available on the NHS for my case and could cost around £100,000 per year, although there is a lot of uncertainty surrounding this.

    Your generous contributions will help to fund this treatment and the associated care. Excess funds will be donated to a cause that encourages the same personalised approach to cancer treatment that is proving beneficial to me.

    No matter how small, I am grateful for all contributions.

    Thank you for taking the time to read my story.

    Updates

    17

    • Joshua Barnfather9 months ago
      Joshua Barnfather

      Joshua Barnfather

      9 months ago

      Hi all, just wanted to let you know that a research paper on my case has just been published. It's a really interesting read and shows what the funds raised has contributed to achieving. You can find it here: http://molecularcasestudies.cshlp.org/content/5/5/a004408.full.pdf

      Share this update to help us raise more

    • Joshua Barnfather10 months ago
      Joshua Barnfather

      Joshua Barnfather

      10 months ago

      Hi all, just a quick update to let you know that I've recently got more scan results that show the treatment is still working great. Thanks for the continued support :)

      Share this update to help us raise more

    • Joshua Barnfather1 year ago
      Joshua Barnfather

      Joshua Barnfather

      1 year ago

      Hi all, check out “War in the Blood” on BBC 2 at 9PM tonight. It’s about trialling immunotherapy cancer treatments on patients that haven’t responded to standard options. From what I’ve read, these patients have completely different cancers to me and the specific immunotherapies being tested are also different to mine. However, I’m wondering if there might be parts of their stories similar to my own... https://www.ucl.ac.uk/news/2019/jul/war-blood-film-about-car-t-cell-therapy

      Share this update to help us raise more

    2 years ago

    Joshua Barnfather started crowdfunding

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    Page last updated on: 1/26/2020 09.27

    Supporters

    1140

    • Anonymous

      Anonymous

      Jan 26, 2020

      Best of luck Joshua xx

    • Anonymous

      Anonymous

      Jan 21, 2020

    • Anonymous

      Anonymous

      Dec 7, 2019

      Seek Jesus ask him to show you he is real god bless you

      £20.00

    • Amanda Clayton

      Amanda Clayton

      Dec 2, 2019

      Today's kindness challenge: support a charity or cause close to my heart. Cancer has affected my friends and family. I searched just giving and found you nearby. Good luck x

      £10.00

    • Ryehill Building Supplies

      Ryehill Building Supplies

      Nov 20, 2019

      £5.00

    • Anonymous

      Anonymous

      Nov 1, 2019

    • Jill Carr

      Jill Carr

      Oct 20, 2019

      Great to hear that you are doing so well Josh. Best wishes, love Jill xx

      £100.00

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    About Crowdfunding
    About the fundraiser
    Joshua Barnfather

    Joshua Barnfather

    Hull, UK

    I'm Joshua Barnfather and I have a rare skin condition, Xeroderma Pigmentosum. In Feb 2017, this caused me to develop angiosarcoma cancer. Since then, it spread from my face to my lymph nodes, scalp, bones, liver, lungs (and their outer lining) and the outer lining of my heart.

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