Your friends are fundraising. Don't miss out, opt in.

Joshua Barnfather

Joshua Barnfather is crowdfunding

0

%

£69,829raised of £100,000 target by 1112 supporters

Weʼre raising £100,000 to help fund life-extending cancer treatment.

Hull, UK
13 days to go

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Who am I?

I'm Joshua Barnfather. I'm 31 years old and I was born with a rare skin condition, Xeroderma Pigmentosum.

This genetic disorder means my skin has a reduced ability to repair DNA damage, specifically that caused by Ultra Violet light.

For my whole life, I've tried to avoid UV light. I've covered up during daylight hours, stayed indoors wherever possible and adjusted my life and environment to protect my skin and overall health.

Despite the best efforts of me and my family, over the course of my life I have developed several skin cancers that had been successfully treated without life-threatening impact; until now.

In February 2017, I was diagnosed with angiosarcoma, a cancer affecting the inner lining of the blood vessels.

I have had many unsuccessful attempts at face and lung surgery, chemotherapy, trial drugs and lymph node radiotherapy to tackle my cancer. I have also had long hospital stays battling serious infections and severe heart complications. After these experiences, standardised treatments have now been deemed ineffective for my case.

How your money will help

Because of my unique characteristics as a Xeroderma Pigmentosum patient, specialists believe that experimental cancer treatment could extend my life. However, this is not readily available on the NHS for my case and could cost around £100,000 per year, although there is a lot of uncertainty surrounding this.

Your generous contributions will help to fund experimental treatment and the associated care.

No matter how small, I am grateful for all contributions to fund my treatment.

Thank you for taking the time to read my story.

Share this story

Updates

13

  • Joshua Barnfather4 months ago
    Joshua Barnfather

    Joshua Barnfather

    4 months ago

    Hi everyone, just wanted to share this article from my old High School who have done some much appreciated fund raising. Take a look: http://www.withernseahigh.org.uk/latest-news/this-month/1052-treatment-progressing-well-for-former-student-josh

    Share this update to help us raise more

  • Joshua Barnfather4 months ago
    Joshua Barnfather

    Joshua Barnfather

    4 months ago

    Hi all, I have now had 5 sessions of immunotherapy treatment. Progress has recently been assessed with scans and the results were amazing. A few months ago the spread of my cancer was extensive to say the least. At this time, the cancer in my face, scalp, bones and lungs has now resolved. In my lymph nodes, liver, lung lining and heart lining it has reduced dramatically, with only small amounts remaining. I will now continue with more immunotherapy and hope the positive progress continues. Thank you all for making this happen :) Josh

    Share this update to help us raise more

  • Joshua Barnfather6 months ago
    Joshua Barnfather

    Joshua Barnfather

    6 months ago

    Hi everyone, just on my way to London for a hospital appointment before my 3rd cycle of immunotherapy treatment in between Christmas and New Year. This is excellent progress after spending some time being unwell in hospital. Just wanted to thank you all again for the ongoing support and fundraising efforts that make it all possible :)

    Share this update to help us raise more

10 months ago

Joshua Barnfather started crowdfunding

Leave a message of support

Page last updated on: 6/11/2019 08.43

Supporters

1112

  • Anonymous

    Anonymous

    Jun 11, 2019

    £10.00

  • Jessie Jones

    Jessie Jones

    Jun 7, 2019

    I hope you get the treatment you need! Lots of love mate!

    £5.00

  • Sandra Garcia-Jones

    Sandra Garcia-Jones

    May 29, 2019

    The money raised from The Spanish Airmada skydive ❤ Next time we jump, you're doing it with us 😀

    £2,005.00

  • Anonymous

    Anonymous

    May 29, 2019

    £5.00

  • Kristian Ralph

    Kristian Ralph

    May 26, 2019

    From RBS building supplies customers. Keep it up!

    £25.00

  • Anonymous

    Anonymous

    May 22, 2019

    £20.00

  • Anonymous

    Anonymous

    May 9, 2019

    Hope it continues to go well

    £5.00

Joshua Barnfather

Become a supporter

Help Joshua Barnfather raise more

About the fundraiser
Joshua Barnfather

Joshua Barnfather

Hull, UK

I'm Joshua Barnfather and I have a rare skin condition, Xeroderma Pigmentosum. In Feb 2017, this caused me to develop angiosarcoma cancer. Since then, it spread from my face to my lymph nodes, scalp, bones, liver, lungs (and their outer lining) and the outer lining of my heart.

Report this Page
Donate