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Joshua Barnfather

Joshua Barnfather is crowdfunding

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£67,624raised of £100,000 target by 1103 supporters

Weʼre raising £100,000 to help fund life-extending cancer treatment.

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Who am I?

I'm Joshua Barnfather. I'm 31 years old and I was born with a rare skin condition, Xeroderma Pigmentosum.

This genetic disorder means my skin has a reduced ability to repair DNA damage, specifically that caused by Ultra Violet light.

For my whole life, I've tried to avoid UV light. I've covered up during daylight hours, stayed indoors wherever possible and adjusted my life and environment to protect my skin and overall health.

Despite the best efforts of me and my family, over the course of my life I have developed several skin cancers that had been successfully treated without life-threatening impact; until now.

In February 2017, I was diagnosed with angiosarcoma, a cancer affecting the inner lining of the blood vessels.

I have had many unsuccessful attempts at face and lung surgery, chemotherapy, trial drugs and lymph node radiotherapy to tackle my cancer. I have also had long hospital stays battling serious infections and severe heart complications. After these experiences, standardised treatments have now been deemed ineffective for my case.

How your money will help

Because of my unique characteristics as a Xeroderma Pigmentosum patient, specialists believe that experimental cancer treatment could extend my life. However, this is not readily available on the NHS for my case and could cost around £100,000 per year, although there is a lot of uncertainty surrounding this.

Your generous contributions will help to fund experimental treatment and the associated care.

No matter how small, I am grateful for all contributions to fund my treatment.

Thank you for taking the time to read my story.

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Updates

13

  • Joshua Barnfather2 months ago
    Joshua Barnfather

    Joshua Barnfather

    2 months ago

    Hi everyone, just wanted to share this article from my old High School who have done some much appreciated fund raising. Take a look: http://www.withernseahigh.org.uk/latest-news/this-month/1052-treatment-progressing-well-for-former-student-josh

    Share this update to help us raise more

  • Joshua Barnfather3 months ago
    Joshua Barnfather

    Joshua Barnfather

    3 months ago

    Hi all, I have now had 5 sessions of immunotherapy treatment. Progress has recently been assessed with scans and the results were amazing. A few months ago the spread of my cancer was extensive to say the least. At this time, the cancer in my face, scalp, bones and lungs has now resolved. In my lymph nodes, liver, lung lining and heart lining it has reduced dramatically, with only small amounts remaining. I will now continue with more immunotherapy and hope the positive progress continues. Thank you all for making this happen :) Josh

    Share this update to help us raise more

  • Joshua Barnfather4 months ago
    Joshua Barnfather

    Joshua Barnfather

    4 months ago

    Hi everyone, just on my way to London for a hospital appointment before my 3rd cycle of immunotherapy treatment in between Christmas and New Year. This is excellent progress after spending some time being unwell in hospital. Just wanted to thank you all again for the ongoing support and fundraising efforts that make it all possible :)

    Share this update to help us raise more

8 months ago

Joshua Barnfather started crowdfunding

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Page last updated on: 4/21/2019 16.22

Supporters

1103

  • Faith Williams

    Faith Williams

    Apr 21, 2019

    £15.00

  • Melissa Hardcastle

    Melissa Hardcastle

    Apr 14, 2019

    £5.00

  • C4DI

    C4DI

    Apr 12, 2019

    Donations from C4DI Events

    £160.73

  • Jack Davis

    Jack Davis

    Apr 11, 2019

    Best wishes Josh, you can do it!

    £100.00

  • Anonymous

    Anonymous

    Apr 9, 2019

  • Sarah Barnes

    Sarah Barnes

    Apr 7, 2019

    Hope you get the treatment that you need x

    £5.00

  • Anonymous

    Anonymous

    Apr 4, 2019

    £20.00

Joshua Barnfather

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About the fundraiser
Joshua Barnfather

Joshua Barnfather

Hull, UK

I'm Joshua Barnfather and I have a rare skin condition, Xeroderma Pigmentosum. In Feb 2017, this caused me to develop angiosarcoma cancer. Since then, it spread from my face to my lymph nodes, scalp, bones, liver, lungs (and their outer lining) and the outer lining of my heart.

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