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£32,686raised of £100,000 target by 685 supporters

Weʼre raising £100,000 to help fund life-extending cancer treatment.

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Who am I?

I'm Joshua Barnfather. I'm 30 years old and I was born with a rare skin condition, Xeroderma Pigmentosum.

This genetic disorder means my skin has a reduced ability to repair DNA damage, specifically that caused by Ultra Violet light.

For my whole life, I've tried to avoid UV light. I've covered up during daylight hours, stayed indoors wherever possible and adjusted my life and environment to protect my skin, and protect my health.

Despite the best efforts of mine and my family, over the course of my life I have developed several skin cancers that had been successfully treated without life-threatening impact; until now.

In February 2017, I was diagnosed with angiosarcoma, a cancer affecting the inner lining of the blood vessels.

After months of unsuccessful surgeries, chemotherapy, trial drugs and, most recently, radiotherapy targeting the lymph nodes in my neck, standardised treatments have been deemed ineffective.

How your money will help

Because of my unique characteristics as a Xeroderma Pigmentosum patient, specialists believe that the immunotherapy treatment, Pembrolizumab, could extend my life. However, this is not readily available on the NHS for angiosarcoma patients and costs around £100,000 per year.

Your generous contributions will help to fund these drugs, their administration and associated care.

No matter how small, I am grateful for any and all contributions to fund my treatment.

Thank you for taking the time to read my story.

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Updates

4

  • Joshua Barnfather1 day ago
    Joshua Barnfather

    Joshua Barnfather

    1 day ago

    Morning everyone, I’m out of hospital now so I can begin my recovery in preparation for the Pembrolizumab treatment that we are all saving up for. It’s been rough but we are all making good steps in the right direction everyday. Thanks all :)

    Update from the Page owner

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  • Joshua Barnfather3 days ago
    Joshua Barnfather

    Joshua Barnfather

    3 days ago

    Hi everyone, the progress with the campaign is amazing. I would of never expected to of raised over £27K for my treatment so early! It has been really lovely to hear words of support from so many people from my past as well as strangers. Today I’m still in hospital but things and looking good and it seems like I’ll be out tomorrow. I’ve had some unexpected treatment too, which was wonderful! I’ve just had a visit from Dr. Bacon for some pet therapy! I’d highly recommend it :)

    Update from the Page owner

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  • Joshua Barnfather9 days ago
    Joshua Barnfather

    Joshua Barnfather

    9 days ago

    Evening everybody, just enjoying a night in hospital for a blood transfusion. Not doing too bad. I found out that I might be able to start the first part of the treatment I need in the next month. That’s all thanks to the support you guys have given me since starting this Just Giving campaign. You are are really making a difference to my health. Thank you so much :)

    Update from the Page owner

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14 days ago

Joshua Barnfather started crowdfunding

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Page last updated on: 9/19/2018 8:58 AM

Supporters

685

  • Marc Giesselink

    Marc Giesselink

    Sep 19, 2018

    Keep up the spirit you show so nicely in all the pictures.

    £50.00

  • Anonymous

    Anonymous

    Sep 19, 2018

    £20.00

  • Jenny Curtis

    Jenny Curtis

    Sep 19, 2018

    Best wishes for your treatment Josh x

    £20.00

  • Anonymous

    Anonymous

    Sep 19, 2018

  • Anonymous

    Anonymous

    Sep 19, 2018

    HiCame to know about your condition from your dad's post on our company page. Lots of love and good luck my friend. we are here for your!

  • Edward Haugland

    Edward Haugland

    Sep 19, 2018

    Stay strong Josh and all the best with the treatment. #penguinspirit

    £30.00

  • Lasse Isaksen

    Lasse Isaksen

    Sep 19, 2018

    £30.00

Joshua Barnfather

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About the fundraiser
Joshua Barnfather

Joshua Barnfather

Hull, UK

My name is Joshua Barnfather. I'm 30 years old and I was born with a rare skin condition, Xeroderma Pigmentosum. This was the reason for being diagnosed with angiosarcoma in Feb 2017, which has since spread from my face to my lymph nodes, bones and lungs.

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