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Joshua Barnfather

Joshua Barnfather is crowdfunding

0%
£70,410raised of £100,000 target by 1126 supporters

Weʼre raising £100,000 to help fund life-extending cancer treatment.

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Who am I?

I'm Joshua Barnfather. I'm 31 years old and I was born with a rare skin condition, Xeroderma Pigmentosum.

This genetic disorder means my skin has a reduced ability to repair DNA damage, specifically that caused by Ultra Violet light.

For my whole life, I've tried to avoid UV light. I've covered up during daylight hours, stayed indoors wherever possible and adjusted my life and environment to protect my skin and overall health.

Despite the best efforts of me and my family, over the course of my life I have developed several skin cancers that had been successfully treated without life-threatening impact; until now.

In February 2017, I was diagnosed with angiosarcoma, a cancer affecting the inner lining of the blood vessels.

I have had many unsuccessful attempts at face and lung surgery, chemotherapy, trial drugs and lymph node radiotherapy to tackle my cancer. I have also had long hospital stays battling serious infections and severe heart complications. After these experiences, standardised treatments have now been deemed ineffective for my case.

How your money will help

Because of my unique characteristics as a Xeroderma Pigmentosum patient, specialists believe that immunotherapy cancer treatment will be useful for me. However, this is not readily available on the NHS for my case and could cost around £100,000 per year, although there is a lot of uncertainty surrounding this.

Your generous contributions will help to fund this treatment and the associated care. Excess funds will be donated to a cause that encourages the same personalised approach to cancer treatment that is proving beneficial to me.

No matter how small, I am grateful for all contributions.

Thank you for taking the time to read my story.

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Updates

15

  • Joshua Barnfather1 month ago
    Joshua Barnfather

    Joshua Barnfather

    1 month ago

    Hi all, check out “War in the Blood” on BBC 2 at 9PM tonight. It’s about trialling immunotherapy cancer treatments on patients that haven’t responded to standard options. From what I’ve read, these patients have completely different cancers to me and the specific immunotherapies being tested are also different to mine. However, I’m wondering if there might be parts of their stories similar to my own... https://www.ucl.ac.uk/news/2019/jul/war-blood-film-about-car-t-cell-therapy

    Share this update to help us raise more

  • Joshua Barnfather2 months ago
    Joshua Barnfather

    Joshua Barnfather

    2 months ago

    Hi everyone, just a quick update to let you all know that the immunotherapy treatment is continuing to work great. It's really been excellent because I haven't really had any side effects either so life seems pretty normal! Thank you all again for your ongoing support :)

    Share this update to help us raise more

  • Joshua Barnfather6 months ago
    Joshua Barnfather

    Joshua Barnfather

    6 months ago

    Hi everyone, just wanted to share this article from my old High School who have done some much appreciated fund raising. Take a look: http://www.withernseahigh.org.uk/latest-news/this-month/1052-treatment-progressing-well-for-former-student-josh

    Share this update to help us raise more

1 year ago

Joshua Barnfather started crowdfunding

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Page last updated on: 8/18/2019 11.33

Supporters

1126

  • Anonymous

    Anonymous

    Aug 18, 2019

    Hull 10K Sponsor money raised by myself.

    £214.00

  • Kristian Ralph

    Kristian Ralph

    Jul 29, 2019

    Hello Josh! From the customers of Ryehill Building Supplies x

    £12.20

  • Michael Barnfather

    Michael Barnfather

    Jul 21, 2019

    Good luck with the fund raise Josh, Dave Clough, friend and cycling pal of your dad.

    £50.00

  • Tim Stephenson

    Tim Stephenson

    Jul 21, 2019

    All the best Josh - your father is a former colleague and we have just shared a cost to coast bike ride. Tim

    £50.00

  • Michael White

    Michael White

    Jul 10, 2019

    Really pleased to hear the treatment is working well Josh. Keep up that awesome positivity! Best wishes, Mike.

    £10.00

  • Anonymous

    Anonymous

    Jul 7, 2019

    Keep fighting Josh. Never give up. Glad to hear the therapy is helping. Be strong. Good Luck always.

  • Anonymous

    Anonymous

    Jul 7, 2019

    A wee bit more towards your total.All the very best.

Joshua Barnfather

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About the fundraiser
Joshua Barnfather

Joshua Barnfather

Hull, UK

I'm Joshua Barnfather and I have a rare skin condition, Xeroderma Pigmentosum. In Feb 2017, this caused me to develop angiosarcoma cancer. Since then, it spread from my face to my lymph nodes, scalp, bones, liver, lungs (and their outer lining) and the outer lining of my heart.

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