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£51,009raised of £100,000 target by 992 supporters

Weʼre raising £100,000 to help fund life-extending cancer treatment.

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Who am I?

I'm Joshua Barnfather. I'm 30 years old and I was born with a rare skin condition, Xeroderma Pigmentosum.

This genetic disorder means my skin has a reduced ability to repair DNA damage, specifically that caused by Ultra Violet light.

For my whole life, I've tried to avoid UV light. I've covered up during daylight hours, stayed indoors wherever possible and adjusted my life and environment to protect my skin, and protect my health.

Despite the best efforts of mine and my family, over the course of my life I have developed several skin cancers that had been successfully treated without life-threatening impact; until now.

In February 2017, I was diagnosed with angiosarcoma, a cancer affecting the inner lining of the blood vessels.

After months of unsuccessful surgeries, chemotherapy, trial drugs and, most recently, radiotherapy targeting the lymph nodes in my neck, standardised treatments have been deemed ineffective.

How your money will help

Because of my unique characteristics as a Xeroderma Pigmentosum patient, specialists believe that the immunotherapy treatment, Pembrolizumab, could extend my life. However, this is not readily available on the NHS for angiosarcoma patients and costs around £100,000 per year.

Your generous contributions will help to fund these drugs, their administration and associated care.

No matter how small, I am grateful for any and all contributions to fund my treatment.

Thank you for taking the time to read my story.

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Updates

10

  • Joshua Barnfather7 days ago
    Joshua Barnfather

    Joshua Barnfather

    7 days ago

    BIG NEWS!!! I’ve started immunotherapy and you all made it happen :) I’d gone to hospital nearly 2 weeks ago for interim chemo during my lung surgery and radiotherapy recovery. This couldn’t start because of a chest infection, caused by the cancer, so I had to have an ongoing hospital stay. Docs soon decided I’d recovered enough to start immunotherapy! This meant I could pay with funds raised and get started. This costs around £10K everyday 21 days. I hope we can keep fund raising so I can fund further cycles. I can’t thank you all enough.

    Share this update to help us raise more

  • Joshua Barnfather1 month ago
    Joshua Barnfather

    Joshua Barnfather

    1 month ago

    Hi all, this is a brief interview I did for the BBC recently. Take a look :) https://m.facebook.com/story.php?story_fbid=1176296909195775&id=641264249551396

    Share this update to help us raise more

  • Joshua Barnfather1 month ago
    Joshua Barnfather

    Joshua Barnfather

    1 month ago

    Hi all, we are making excellent progress towards the goal. I can’t thank you enough! Recently, it has been found that my condition has deteriorated a bit so this campaign is getting even more important to me. The cancer in my right lung has caused it to collapse so I’m having surgery this week to reinflate it. I’m also going to start treatment with an interim chemotherapy option that is OK for use whilst I’m still recovering from radiotherapy. This will try and shrink other tumours. Looking forward to getting started :)

    Share this update to help us raise more

2 months ago

Joshua Barnfather started crowdfunding

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Page last updated on: 11/13/2018 6:33 PM

Supporters

992

  • John Gilbert

    John Gilbert

    Nov 13, 2018

    #QuizforJosh

    £80.00

  • Jess Wilson

    Jess Wilson

    Nov 13, 2018

    Good luck to all the teams taking part in #footyforjosh tonight!

    £20.00

  • Michael White

    Michael White

    Nov 12, 2018

    [#doitforjosh T-Shirt payment] - Best wishes Josh!

    £15.00

  • Sarah Keogh

    Sarah Keogh

    Nov 11, 2018

    god bless you I hope my small donation can help in some small way

    £20.00

  • Mike and Cathy Jump

    Mike and Cathy Jump

    Nov 11, 2018

    Hope all goes well.

    £80.00

  • Steve Hulme

    Steve Hulme

    Nov 10, 2018

    Good cause, best wishes.

    £20.00

  • Raiyah Ismaiel

    Raiyah Ismaiel

    Nov 10, 2018

    £15.00

Joshua Barnfather

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About the fundraiser
Joshua Barnfather

Joshua Barnfather

Hull, UK

My name is Joshua Barnfather. I'm 30 years old and I was born with a rare skin condition, Xeroderma Pigmentosum. This was the reason for being diagnosed with angiosarcoma in Feb 2017, which has since spread from my face to my lymph nodes, bones and lungs.

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