Your friends are fundraising. Don't miss out, opt in.

We did it!

Sarah Frow raised £5,241 from 188 supporters

or

Start your own crowdfunding page

Closed 21/02/2021

95%
£5,241
raised of £5,500 target by 188 supporters

    Weʼve raised £5,241 to Help Joshua achieve his bucket list, pay for medical expenses and any other expenses associated with his illness.

    Lincoln, Lincolnshire.
    Funded on Sunday, 21st February 2021

    Don't have time to donate right now?

    Story

    UPDATE 8/11/20

    We just want to say thank you to every single one of you that has donated or shared Joshuas page.

    Last week we had the devastating news that the chance of open heart surgery is very slim as they are worried about the risks of him coming through the operation. He’s extremely high risk and he’s extremely poorly. He is in heart failure and he has severe heart and lung conditions.

    We are raising money for a second opinion as we believe if anyone can save Joshua then it’s Professor Gatzoulis from the Royal Brompton. We believe that to get a faster result we need to go private,we will do whatever it takes to give Joshua the best care possible. If Professor Gatzoulis says that nothing can be done then we will use what funds are left to hopefully complete Joshuas bucket list.

    It includes

    A trip to the Deep in hull.

    A trip to London to go to Harry Potter studios and the London dungeons.

    A trip to Disneyland to go on his favourite ride ‘The haunted mansion’

    To go to a WWE match and meet the wrestlers.

    He’d love to chat to his favourite band Slipknot’

    To have a shopping trip to buy his family gifts for Xmas 😞 ( he loves his family so much)

    To make memories,movie nights,crafts with the family that he’s made for us and hand casts.

    I’m sure he has many more to be honest but he doesn’t know how bad things are,we’ve not told him as we need him to have hope 💙

    We’d also like to make his 21st birthday one to remember,if anyone would like to send him a card then please inbox for out address.

    Thank you once again for all your donations,shares and well wishes

    UPDATE: We have had the devastating news after Joshua’s assessments that his condition has deteriorated and is worse than specialist thought, his condition is too severe for surgery, the only option now is to manage his symptoms or the vague possibilty of a heart and lung transplant, the specialist has said this option is unlikely.

    The money raised will be going towards Joshua’s 21st birthday at the end of November, completing what we can manage on his bucket list (which is difficult because of covid), for any equipment he may need to make him more comfortable and to help with the costs associated with hospital visits and care.

    Myself and Joshua’s parents want to thank you for all your donations, this money may mean that Joshua’s life is more comfortable and hopefully enable him to make some lovely memories, which I know means a lot to all of us. Joshua is an amazing young man, it is heartbreaking seeing him struggle and for such a normally postive young man being scared of what’s ahead. It is some comfort to us all to know how many people care about him and how many lives and hearts Joshua has touched. Thank you for your kind messages.

    My amazing godson Joshua is 20 years old. Joshua has a condition called Williams Syndrome. Throughout his life Joshua has struggled with heart problems as well as other problems that come hand in hand with having Williams Syndrome. Joshua’s heart problems have been getting progressively worse and last year Joshua’s health took a turn for the worse and he ended up hospitalised for a considerable time with pneumonia and heart and lung problems. Since then Joshua has struggled to recover, he can hardly walk anywhere, struggles to breathe and is basically housebound as hes vulnerable. The family have only just yesterday found out that Joshua has a condition called ‘mid aorta syndrome’ apparently it’s very rare and even if he pulls through surgery his life expectancy if his MAS is left untreated is under 40yrs old. Normal aortas are 2.5 inches wide, Joshua’s is 6mm wide. Joshua has also been diagnosed with the following conditions:

    -Severe mitral regurgitation

    -Pulmonary arterial hypertension

    -middle aortic syndrome

    -aortic stenosis

    At the moment he is undergoing lots of tests to see if he can undergo surgery that may help, there is a lot of doubt if this will even be possible due to him being so poorly.Joshua is one of the most amazing young people I have ever known, he is so loving and caring and never has a bad thing to say about anyone or anything. He has such a big heart. I want to raise as much money as possible for him so that his parents don’t have to worry about the extra costs of extended hospital stays (Joshua doesn’t recieve his treatment and testing locally so they may have to pay for hotels, meals etc), any equiptment that may help make Joshua more comfortable and so that if there is anything he needs or wants that might brighten his life up a bit.There may also be a chance Joshua might need to see a soecialist in the US that may be able to help him in the future, this will be very expensive and mean that the family will badically have to sell everything they own (house, cars, etc) so any money raised will go towards paying for this treatment too if this becomes the case. Joshua’s parents have two children with significant special needs which makes it difficult for them to work and ensure they get what they need, so every penny really does help and will be so much appreciated. Thank you in advance!

    Updates

    2

    • Sarah Frow1 year ago
      Sarah Frow

      Sarah Frow

      1 year ago

      I have updated Joshua’s page, unfortunately surgery is no longer an option for Joshua, we’ve been told all they can do for now is to manage his symptoms, the option of a heart and lung transplant is deemed unlikely. Joshua’s condition is worse than we knew. Our aim now is to make Joshua as comfortable as possible if he needs any aids or help and to try and give him and his family some amazing memories. Thank you so much for all the lovely messages and donations, I have tried to thank everyone individually, I am sorry if I have missed anyone.

      Share this update to help us raise more

    • Sarah Frow1 year ago
      Sarah Frow

      Sarah Frow

      1 year ago

      I cannot believe we have reached out first goal of £500!! This is amazing! We are going to keep going and trying to raise as much as possible to help with any extra costs associated with hospital visits and to help Joshua achieve some of the things on his bucket list. Money will also be used towards treatment in the US if he ends up needing it. Thank you all so much, your help and support means so much to everyone that loves Joshua. Please keep sharing and donating ❤️

      Share this update to help us raise more

    1 year ago

    Sarah Frow started crowdfunding

    Leave a message of support

    Page last updated on: 12/12/2020 23.01

    Supporters

    188

    • Anonymous

      Anonymous

      Dec 12, 2020

      Hope his wish is fulfilled xx

    • Kieran

      Kieran

      Dec 3, 2020

      £10.00

    • Scarlet Daubney

      Scarlet Daubney

      Dec 3, 2020

      £20.00

    • Lacey

      Lacey

      Dec 3, 2020

      ❤️

      £10.00

    • Natalie bond

      Natalie bond

      Dec 3, 2020

      £50.00

    • Anonymous

      Anonymous

      Dec 2, 2020

      £20.00

    • Dale wheatley

      Dale wheatley

      Dec 1, 2020

      My heart goes out to Joshua and your family. I hope that bright beautiful boy enjoys every day. All my love.

      £10.00

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Great people make things happen

    Do you know anyone in need or maybe want to help a local community cause?

    Create you own page and donʼt let that cause go unfunded!

    About Crowdfunding
    About the fundraiser
    Sarah Frow

    Sarah Frow

    Lincoln, Lincolnshire.

    Report this Page