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liane huntley raised £250 from 6 supporters

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Closed 30/04/2018

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£250raised of £2,000 target by 6 supporters

    Weʼve raised £250 to Please donate just a £1 for William a teenager with autism and rare sleep condition called rhythmic movement disorder for special bed

    Chesterfield
    Funded on Monday, 30th April 2018

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    Story

    Please donate to our campaign justapoundforwilliam

    Please help me raise the £2,000 needed for williams new bedroom and wet room, Williams condition is a rare sleep condition not many cases in the UK, Rhythmic Movement Disorder is a chronic sleep disorder with head banging body rocking leaving sufferer tired with poor concentration and extremely exhausted

    Please donate £1 you can't even park your car , grab a coffee or have a ice cream for a £1, my hope is to get lots of people to donate you just won't miss a pound its loose change, but can help a family in need .

    We have been awarded a disability Grant to help build for William his new bedroom with wet room but we have a shortfall the council have said that it could take up to two years for them to come in to do the build ,we can project manager our selves and we could have a builder in as quick as Easter 2018 please help us reach our target to get there help for our son we need by removing from a small box room to a downstairs large room with king size bed.

    William has special needs and we need your help, please donate to his page

    We are fundraising to build William a new bedroom with a special bed from creative care bed ,William condition is rare and no funding available for equipment to help the families deal with server cronic Rhythmic movement disorder with head banging and body rocking in low leave of sleep, there NO CURE he sits up in bed and at force slams his head to his ankles all over and over with no control all night long but he is a sleep, the sound he makes keeps the whole family awake, the impact on the bed and mattress is high and breaking 4-5 bed a year

    It has taken us 14 years of broken sleep to now finely get a diagnosie what it is , he is on with 3 hospitals Chesterfield, Sheffield children's hospital and Southampton he also has ADHD learning delays and autism and micro deletion on chromosome 15. Days are hard on there own and then up all night to leaves family exhausted bed costs £5,000 and the rest is for a new extension as William is 6ft 3 so bed needs to be 7ft long made to measure. we also will have to have bedding made to fit bed

    We have been told that there is no cure and need to have a management plan, so we can get a good night rest William is 15 years old now and need to look to his future

    please help me to reach our goal please DONATE and share our story your Facebook timelines

    we have a Facebook page go to Williams good night campaign

    Updates

    1

    • liane huntley2 years ago
      liane huntley

      liane huntley

      2 years ago
      Update from the Page owner

      Share this update to help us raise more

    2 years ago

    liane huntley started crowdfunding

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    Page last updated on: 1/16/2018 18.16

    Supporters

    6

    • Megan Howes

      Megan Howes

      Jan 16, 2018

      Hope William gets his new bedroom soon

      £100.00

    • David Edmonds

      David Edmonds

      Jan 6, 2018

      Hope you achieve your goal

      £10.00

    • Mary Hegedus

      Mary Hegedus

      Jan 3, 2018

      Good luck with your fundraising x

      £10.00

    • Derek Henry

      Derek Henry

      Jan 2, 2018

      £20.00

    • Anna Phillips

      Anna Phillips

      Dec 31, 2017

      £10.00

    • martin phillips

      martin phillips

      Dec 31, 2017

      i'm a m8 of bills, happy to help

      £100.00

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    About Crowdfunding
    About the fundraiser
    liane huntley

    liane huntley

    Chesterfield

    Williams rare condition is called rhythmic movement disorder, he head bangs in low level of sleep leaving him exhausted with memory problems, as well as ADHD learning delays and atusum, microdeletion chromosome 15 ,raising money for a safe bed for his new build bedroom

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