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K&A Laskowski raised £4,165.74 from 126 supporters.

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Closed 18/01/2018

55%
£4,165raised of £7,500 target by 126 supporters

    Weʼve raised £4,165 to support Children Oncology WARD E39 at QMC in Nottingham,CLIC SARGENT Charity and our emergency expenses linked with Kacper's sudden disease

    Location
    Northampton, United Kingdom
    Time left
    Funded on Thursday, 18th January 2018

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    Story

    On the 27th of Aug 2017 our life was turned upside down. It started few weeks earlier when Kacper - the eldest of our boys had been experiencing a normal cold as we thought.. We went on holiday together after checking his condition with doctors. It was nothing to worry about. He was fine on holiday. Playing tennis every day. A bit tired towards the night and very sleepy. After we came back he started having fevers, shivering and we knew there is something more serious happening than a normal cold or virus. We called E&A. They took him to hospital for tests. Only after few hours they said that potentially it might be something serious as Leukeamia and within few days he might be taken to a specialist hospital. We didn't need to wait long. His condition deteriorated so much they decided to put him in ambulance in the middle of the night and transport him to Nottingham Queen's Med Centre to Children Oncology Ward E39. He's been there now for 3 weeks...

    Within a few days in QMC he had 2 ops. One finished in kids intensive care as Kacper didn't wake up after operation. It took 24 hours to bring him back. Shortly after that operation we got a final diagnosis: Hemophagocytic Lymphohistiocytosis called HLH and triggered by Epstein Baar virus EPV. It's a very serious life threatning condition not treated kills in 2 months...We will never forget that moment when we heard that. Our world stopped turning, collapsed on our shoulders so suddenly..We knew we need to be strong for our boys...but how?...We talked to Kacper. We had always a good contact with him. We told him everything we knew at that moment. We cried together just couldn't help it..

    We started researching this disease. It is so rare...Only one child is sick in 1.2 million. His chemotherapy started. We got to know people all over the world with HLH through Facebook group called HLH (Survivors and Angels...). So many kids lost their life because of that but then so many survived...It all might lead to bone marrow transplant. We started our battle comparing it to the most difficult and important tournament in Kacper's life. Only 1 month ago he won his last tennis tournament..We sometimes compare this battle to Kilimanjaro climb..It is not easy..but you just need to keep going and dig deep..We got very very close with Kacper being with him 24/7. We blamed ourselves for not noticing the disease earlier. We try our best to be good parents. It is hard as if we're with him we blame ourselves that we're neglecting his brothers (Ozzie 5 and Victor 2) then when we're with them we can't focus and just cannot stop thinking about Kacper. We live 70 miles from Nottingham where Kacper is being treated..Ozzie started yeat 1 at school, Victor is in a nursery. Life for them needs to go on..It is not easy..

    We cannot find words to express how grateful and appreciative we feel for all help, attention and devotion Kacper is receiving from all staff at ward E39. People trully care about every little soul there. That is the reason why we try to raise funds. We want to give something back to them. Also we need to mention wonderful charity CLIC SARGENT who allowed us to stay at Billy's House close to hospital. Myself and Agnes were always participating in various charity fundraising events to raise money for important causes. This is very different. This applies directly to our beloved first Son who is fighting for his life..

    Updates

    11

    • K&A Laskowski4 months ago
      K&A Laskowski

      K&A Laskowski

      4 months ago

      Friday was a big day. Main treatment was finished. Sterroids stopped. We noticed immediate change in Kacper's mood and emotions. Also slowly over the weekend his food craving went nearly back to normal. We're back to Nottingham for a review on Wednesday. We hope Kacper has turned the corner for good.

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    • K&A Laskowski4 months ago
      K&A Laskowski

      K&A Laskowski

      4 months ago

      Back to QMC for the next dose of poison. Kacper generally is doing great. Emotionally better too. Weaning him off from sterroids. Next week we should have review of Kacper's treatment. Fingers crossed..He even started playing tennis again. Hickman central lines are in the way but what a heck...

      Update from the Page owner

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    • K&A Laskowski4 months ago
      K&A Laskowski

      K&A Laskowski

      4 months ago

      We spent a day at a local hospital today. Kacper woke up unwell with symptoms similar to the beginning of the disease. We thought the nightmare is back..Thankfully after blood tests, fluid drip and a rest he was discharched in the evening feeling better.

      Update from the Page owner

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    5 months ago

    K&A Laskowski started crowdfunding

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    Supporters

    126

    • Anonymous

      Anonymous

      Jan 3, 2018

      Kacperek wyzdrowieje.

      £200.00

    • Edward Laskowski

      Edward Laskowski

      Dec 30, 2017

      Dla sprawdzenia czy przeszło.

      £100.00

    • David ( Catherine) Real

      David ( Catherine) Real

      Dec 22, 2017

      £10.00

    • CY BORRELL

      CY BORRELL

      Dec 21, 2017

      Bizzy Bears Preschool is donating the £94.34 raised from our Christmas jumper fundraiser with our love and best wishes to Kacper and family.

      £94.34

    • Andrew Joy Mia Elora

      Andrew Joy Mia Elora

      Dec 15, 2017

      £5.00

    • Liuda Lakucevic

      Liuda Lakucevic

      Dec 7, 2017

      i hope Kacper gets well soon! my heart goes out to the family stay strong! all the best!!

      £20.00

    • Julie and James Owen

      Julie and James Owen

      Dec 4, 2017

      I am happy to be able to donate the money raised by James from his pink hair day. He had a fun day and was very pleased to be able to help.We are all happy to see Kacper back at school.

      £296.40

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    About Crowdfunding
    About the fundraiser
    K&A Laskowski

    K&A Laskowski

    Northampton, United Kingdom

    We are parents of: Kacper 9, Oskar 5 and Wiktor 2.We live in the UK,Northampton.Kacper got very sick recently and has been diagnosed with very rare (1 in 1.2 milion) and life threatening disease hemophagocytic lymphohistiocytosis HLH. Kacper is fighting but needs a lot of support

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