On the 27th of Aug 2017 our life was turned upside down. It started few weeks earlier when Kacper - the eldest of our boys had been experiencing a normal cold as we thought.. We went on holiday together after checking his condition with doctors. It was nothing to worry about. He was fine on holiday. Playing tennis every day. A bit tired towards the night and very sleepy. After we came back he started having fevers, shivering and we knew there is something more serious happening than a normal cold or virus. We called E&A. They took him to hospital for tests. Only after few hours they said that potentially it might be something serious as Leukeamia and within few days he might be taken to a specialist hospital. We didn't need to wait long. His condition deteriorated so much they decided to put him in ambulance in the middle of the night and transport him to Nottingham Queen's Med Centre to Children Oncology Ward E39. He's been there now for 3 weeks...

Within a few days in QMC he had 2 ops. One finished in kids intensive care as Kacper didn't wake up after operation. It took 24 hours to bring him back. Shortly after that operation we got a final diagnosis: Hemophagocytic Lymphohistiocytosis called HLH and triggered by Epstein Baar virus EPV. It's a very serious life threatning condition not treated kills in 2 months...We will never forget that moment when we heard that. Our world stopped turning, collapsed on our shoulders so suddenly..We knew we need to be strong for our boys...but how?...We talked to Kacper. We had always a good contact with him. We told him everything we knew at that moment. We cried together just couldn't help it..

We started researching this disease. It is so rare...Only one child is sick in 1.2 million. His chemotherapy started. We got to know people all over the world with HLH through Facebook group called HLH (Survivors and Angels...). So many kids lost their life because of that but then so many survived...It all might lead to bone marrow transplant. We started our battle comparing it to the most difficult and important tournament in Kacper's life. Only 1 month ago he won his last tennis tournament..We sometimes compare this battle to Kilimanjaro climb..It is not easy..but you just need to keep going and dig deep..We got very very close with Kacper being with him 24/7. We blamed ourselves for not noticing the disease earlier. We try our best to be good parents. It is hard as if we're with him we blame ourselves that we're neglecting his brothers (Ozzie 5 and Victor 2) then when we're with them we can't focus and just cannot stop thinking about Kacper. We live 70 miles from Nottingham where Kacper is being treated..Ozzie started yeat 1 at school, Victor is in a nursery. Life for them needs to go on..It is not easy..

We cannot find words to express how grateful and appreciative we feel for all help, attention and devotion Kacper is receiving from all staff at ward E39. People trully care about every little soul there. That is the reason why we try to raise funds. We want to give something back to them. Also we need to mention wonderful charity CLIC SARGENT who allowed us to stay at Billy's House close to hospital. Myself and Agnes were always participating in various charity fundraising events to raise money for important causes. This is very different. This applies directly to our beloved first Son who is fighting for his life..