Kaden’s Story by Nanny Sues

Kaden is 3 and a half years old and lives with his brother Kenny who is 4 and a half and his Mummy and Daddy and dog Missy. He was born on 20 December 2012. Leading up to Kaden’s birth, his Mummy Frankie and Daddy Danny decided on a home birth and along with Danny I was invited to be second ‘home birth partner’, we had no idea things would go so wrong and that the baby would be born with so many disabilities.
We were in total shock when Kaden was first born my daughter looked up at me and said in a very quiet voice “Mum my baby hasn’t got any fingers”. I will never forget that morning. Danny, like Frankie, was in total shock therefore I was asked by the Midwife if I would cut baby Kaden’s cord; this was the most beautiful bond that any Nan can have with her grandchild, I hold on to that special memory dearly in my heart. I feel it is only right that I reach out and ask for some help for Kaden and his family.
Kaden was rushed to Basildon Hospital and taken to intensive care, he had problems breathing and we found that he had a fused head/scull, fused fingers/toes, deformed feet and a cleft palate. A few days later we was informed that Kaden was diagnosed having Apert Syndrome. The next few weeks were quite surreal and so sad seeing the baby so poorly.
Rather than me explain the condition I have added a quick brief and a link below so you get a professional overview.
Apert Syndrome is a genetic disorder characterized by the premature fusion of certain skull bones (craniosynostosis). This early fusion prevents the skull from growing normally and affects the shape of the head and face. In addition, a varied number of fingers and toes are fused together.
https://ghr.nlm.nih.gov/condition/apert-syndrome