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Karen Diamond raised £1,737 from 37 supporters

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Closed 31/10/2020

86%
£1,737
raised of £2,000 target by 37 supporters

    Weʼve raised £1,737 to New account for St oswalds hospice and LSN. The last just giving has expired so I have had to make a new one.

    Funded on Saturday, 31st October 2020

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Our beautiful daughter willow was born April this year shes the most beautiful, amazing little girl we could have ever asked for ! Born with stunning port wine stains one of which in the shape of a giraffe covering her back and hips. 2 weeks into willows life a trip to hospital unveiled willow was a very special little princess, after her 1st MRI it was discovered she has complex vascular malformations and lymphatic malformations with fatty tissue hypertrophy to both legs, left being more severe. Willow also has lymphatic malformations and vascular malformations surrounding her bowel and rectal passage.

    We have an amazing support system from several hospitals in the UK soon stretching right to London.

    Myself and my husband want to give back for the help we are receiving but most importantly raise awareness of her condition so that hopefully when willow grows up more people will be aware of lymphoedema as everyone we speak to does not know of this condition.

    Primary lymphoedema is caused by alterations (mutations) in genes responsible for the development of the lymphatic system.

    The "faulty" genes cause the parts of the lymphatic system responsible for draining fluid to not develop properly or not work as they should.

    Willow has undergone genetic testing which showed she has a gene mutation in the pik3ca gene. This causes her to have pik3ca related overgrowth syndrome/spectrum, her symptoms are in keeping alongside klippel trenaunay webber syndrome and more. We cannot give willow a definite diagnosis as she has symptoms of various conditions under this spectrum.

    She currently has one kidney larger than the other which is under close monitoring.

    Very recently her lymphedema in her back has begun to swell also.

    This is just the beginning of a big adventure for us and Willow.

    All proceeds will go to St Oswalds & The Lymphoedema support network.

    Updates

    1

    • Karen Diamond7 months ago
      Karen Diamond

      Karen Diamond

      7 months ago
      Update from the Page owner

      Share this update to help us raise more

    8 months ago

    Karen Diamond started crowdfunding

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    Page last updated on: 7/22/2020 21.31

    Supporters

    37

    • Martin

      Martin

      Jul 20, 2020

      Well done and the Corridor Route too eh 🙂 You'll have to go back another time for the awesome views. Hope the legs recover.

      £40.00

    • Karen Diamond

      Karen Diamond

      Jul 16, 2020

      Donations from kellslane school

      £400.00

    • Aaron & Mel

      Aaron & Mel

      Jul 16, 2020

      Well done to you all xx

      £10.00

    • Nana cher

      Nana cher

      Jul 16, 2020

      For my beautiful granddaughter willow diamond xxx

      £10.00

    • Karen Diamond

      Karen Diamond

      Jul 15, 2020

      Shelly's family ... thank you so much xx

      £40.00

    • Lindsay

      Lindsay

      Jul 13, 2020

      Love yous

      £20.00

    • Craig c

      Craig c

      Jul 13, 2020

      £10.00

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    About Crowdfunding
    About the fundraiser
    Karen Diamond

    Karen Diamond

    Raising money for St oswalds hospice and LSN

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