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Karen Hamilton raised £4,565.5 from 112 supporters

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Closed 10/10/2017

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£4,565raised of £5,000 target by 112 supporters

    Weʼve raised £4,565 to Fund support costs for Violet's Hospital Treatments.

    Scottish Borders, United Kingdom
    Funded on Tuesday, 10th October 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    This is Violet Brave (yes that really is her middle name!) - so called because she was challenged from the start surviving her premature birth at 28 weeks.

    After 98 days she finally went home at a whopping 2kg. At first, at home, she did really well but it became apparent she had a completely different challenge ahead as she produced alarming and painful kidney stones. She has now been potentially diagnosed with a very rare genetic condition ironically completely unrelated to her being premature. Her condition is called Primary Hyperauloxoria and she may have Type 1 - in short this means that she may need a kidney and liver transplant. In order to have the transplants she needs to grow to at least 10kg but unfortunately the nature of the condition is such that she has a low appetite and has to be tube fed. She recently had her 7th operation to insert a tummy tube to replace the one through her nose.

    The Scottish Health Service have been amazing and we are all so thankful to them. We hope the transplants are not too far away now but she may have to have dialysis meantime. Once Violet is big enough and a relative donor is found she will need a long stay in hospital either in England or even USA. Her parents both work as Fire Fighters and Violet has four older brothers and sisters who will need a lot of care and looking after while mum and dad are away. As Violet's grandma I am raising funds to provide for travel and accommodation costs for mum and dad and some childcare costs to help us look after the others! We have such a difficult time ahead it would be nice to offer some little extras to the other children.

    Violet's Grandad Clive is to embark on a trip across France providing practical support to his friend who is cycling from St Malo to Nice and hopes you might sponsor them to do this. They leave on 21st August and will be away for 3 weeks. Over that time I will post updates of their progress, as they are both in their 70's this is no mean feat. Granddad's recent knee replacement means he cannot cycle himself but he will be equally committed setting up/striking camp, checking routes, cooking, cleaning and washing up as well as maintaining the bike in good order!

    If you would like to know more about Violet's condition you can find it on this link primary hyperoxaluria - Genetics Home Reference. And finally, thank you all for your help in whatever form that may be.

    Updates

    13

    • Karen Hamilton9 months ago
      Karen Hamilton

      Karen Hamilton

      9 months ago

      Violet's condition continues to be stable which has led her consultant to reconsider the initial diagnosis. She is able to take significant fluids (food and water) with her Peg Feed and she is also slowly gaining weight. She remains under close scrutiny by Paediatrician, Dietician, Speech and Language and Physiotherapy - all of whom recommend specialist equipment and interventions but do be assured that if all money raised is not required and Violets prognosis and condition improves, this will be passed directly to the OHF. Thanks again to all

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    • Karen Hamilton1 year ago
      Karen Hamilton

      Karen Hamilton

      1 year ago

      Violet continues to defy the odds and it seems that she may not have PH1 after all and that the battles she continues to face are due to her extreme prematurity. Any excess funds will be donated to the Oxalosis and hyperoxaluria foundation. Thank you again for your support.

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    • Karen Hamilton1 year ago
      Karen Hamilton

      Karen Hamilton

      1 year ago

      Violet's fund raising page closes in a few days time - the response has been truly amazing and it only remains for us to say a massive thank you to everyone who donated. Violet is doing well, just about walking and has started her course of HepB injections in preparation for her transplants. We still have a rocky road ahead but the money raised takes a huge weight of our shoulders knowing that those hidden costs relating to her treatment are covered. Thank you from us all.

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    1 year ago

    Karen Hamilton started crowdfunding

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    Page last updated on: 2/2/2018 7:43 PM

    Supporters

    112

    • Nicola McCurdy

      Nicola McCurdy

      Sep 22, 2017

      Further donation from coffee morning

      £5.00

    • Peebles neighbours

      Peebles neighbours

      Sep 22, 2017

      Contribution from the coffee morning

      £102.50

    • Karen Hamilton

      Karen Hamilton

      Sep 21, 2017

      Took a while to sort out but here is the amazing contribution from the Bike a Thon - absolutely bloomin' marvellous - thank you

      £410.00

    • Karen Hamilton

      Karen Hamilton

      Sep 19, 2017

      Another local donation who wish to remain anonymous - thank you

      £20.00

    • Anonymous

      Anonymous

      Sep 14, 2017

      £10.00

    • Margaret Clifford donations as above.

      Margaret Clifford donations as above.

      Sep 13, 2017

      For a bravé wee girl. Well done Mike and Clive£20.00 from Sandra McMillan£10 from Mabel Walsh

      £30.00

    • Anonymous

      Anonymous

      Sep 10, 2017

      £100.00

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    About Crowdfunding
    About the fundraiser
    Karen Hamilton

    Karen Hamilton

    Scottish Borders, United Kingdom

    I am Violet Brave's grandma. It is important for supporters to know that any excess funds raised but not needed will be donated directly to the Primary Hyperoxaluria Charity. Thank you for your support and donations.

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