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Karl Cunard raised £110 from 8 supporters


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Closed 17/09/2018



£110raised of £200 target by 8 supporters

    Weʼve raised £110 to Life of Riley appeal.

    Funded on Monday, 17th September 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.


    The Life of Riley Appeal Ltd

    Back in April 2017, just after his 5th Birthday, little Riley Watkins was having his bath when he got upset and couldn’t speak. His parents lifted him out and his legs gave way, he couldn’t lift his arms and his face drooped. They rushed him to hospital where he recovered and they could not find anything wrong. This happened again in June and again after that and he was sent for lots of tests.

    At first it was thought that Riley was suffering from epilepsy but in September they were told that he was suffering from three separate conditions.

    Moyamoya disease - This is a very rare condition affecting 1 in 1,000,000 people. Essentially it is a narrowing of the blood vessels supplying the brain and the episodes which Riley had been suffering were TIAs or mini strokes. Failure to treat would lead to a full blown stroke.

    Hypothalamic hamartoma - Another rare condition which only affects 1 in 200,000. This is a benign tumour in his brain which was initially diagnosed as stable. However, Riley has since suffered uncontrolled giggling fits lasting up to ten minutes (gelastic seizures) and other symptoms can follow. This can be a progressively disabling condition.

    Optic Nerve - The doctors also discovered a thickening of the optic nerve. Riley has been seen by an eye specialist and while there is no immediate problem with his sight, he will continue to be monitored.

    Treatment - Due to the severity of Riley’s Moyamoya urgent surgery was called for. This involves taking the main blood vessel supplying the skin (found near the temple) and placing it directly onto the brain. After 5 or 6 months the brain should start to grow new vessels which will become the main pathway for blood to the brain. The blocked arteries cannot be repaired.

    Riley had the operation on the right side of the brain in January lasting 6 hours and he returned to Leeds General infirmary on the 10th April for the operation on the left side lasting 9 and half hours. Even if surgery is successful, Riley will remain at increased risk of stroke for the rest of his life.

    Riley may need surgery for his hypothalamic hamartoma. This is not yet certain but, as things stand, this surgery is not available on NHS and would have to take place overseas (probably USA).

    The Life of Riley Fund - Riley’s father, Chris, had always intended to fund raise primarily to raise money for those organisations who have given the family such fantastic support through these incredibly stressful months. He is keen not only to raise money but also raise awareness of these rare conditions. However, as it has become apparent that they may need funds to get treatment abroad that has become his primary focus.

    To that end we are establishing the Life of Riley Fund Ltd. The primary purpose will be to fund Riley’s treatment and to raise awareness of Moyamoya and Hypothalmic Hamartoma. If for any reason Riley’s treatment proves impossible or unnecessary or excess funds are raised, monies will go towards research into these conditions and to charities which assist children who suffer from rare and similar conditions and which support their families and will be an ongoing charity after Riley’s needs are met.



    Karl Cunard

    Updates appear here

      7 months ago

      Karl Cunard started crowdfunding

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      Page last updated on: 6/12/2018 3:34 PM



      • Adam Clayton

        Adam Clayton

        Jun 12, 2018

        Well done you two on Sunday! For a worthy cause too. Love Ad, Kathryn, Charlie and Daisy xx


      • James Swale

        James Swale

        Jun 10, 2018


      • Rosie


        Jun 10, 2018

        Well done!


      • M Blaza

        M Blaza

        Jun 9, 2018

        Good luck for your run from Nanna xx


      • C Blaza

        C Blaza

        Jun 9, 2018

        Good luck to both of you.


      • Sandra Blaza

        Sandra Blaza

        Jun 9, 2018

        Hope you and Kayleigh make record time xx


      • Alix Lee

        Alix Lee

        Jun 7, 2018

        Good luck you guys!! Love Alix, Tom and Edison xx


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      Karl Cunard

      Karl Cunard

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