Hello everyone
I am fully aware that in today's society everyone seems to be asking a lot of you all for one cause or another and I wish I could say that this is something different but it isn't . Just like many others myself and my family are trying to raise funds that I am very proud to be part of , my beautiful little niece has just been accepted on a programme that would give her the best of everything on offer to help her progress in the little unknown condition she was born with . Ava was born with congenital myotonic muscular dystrophy and fought an amazing battle every day of her life and she has achieved so much in her 18 months of being with us beating every obstacle that has been put in her way , the tiny things that we all take for granted , those smiles , the tiny wave of the hand and of course the cutest blowing kisses you can imagine , all of these are things we were told we may never see and this little girl proved them all wrong and makes our heart miss a beat and brings a tear to our eyes every time she achieves something new. The chance to take Ava abroad for tests and treatment that is not available here in the U.K. Would not only benefit our little princess but would give hope to many others and bring the experience to share back to the uk please please please help Ava get what every child deserves the best that any one has to offer and give as little or as much as you can to help her on her way . Thankyou all in advance and we will give you regular updates of Ava's progress .