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Kayley thompson raised £5,775 from 100 supporters

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Closed 25/08/2022

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£5,775
raised of £8,500 target by 100 supporters

    Weʼve raised £5,775 to help get the specialist bed for kaylan and his needs physically and mentally

    Don't have time to donate right now?

    Story

    Disappointed and Betrayed

    Put bubble wrap around the bed to prevent kaylan hurting himself

    Kaylan was born at 28 weeks premature in 2016 with 2 grade 4 bleeds on the brain, this resulted in Kaylan having cerebral palsy which affects all four limbs and is unable to walk or manage day to day tasks. He is also servely sight impaired and has Hydrocephalus (fluid on the brain) which resulted him to have a shunt to drain the excess fluid, Kaylan is a very sensitive little boy who struggles with the adhd and autism and sensory overload. From the age of 3, Kaylan had a safe space bed to keep him not only mentally but physically safe for sleeping. Kaylan recently underwent more surgeries to be fitted with a colostomy bag and PEG, aswell as a new shunt this year, due to this we have needed a high-low profile bed for Kaylan but also a bed that is suitable in order to keep him safe, but also goes high and low to meet his daily needs. We were stuck and needed a bed ready for Kaylan coming out of hospital which resulted in an adult high profile bed which he has already banged his mouth/head and body off which has caused him and also us as parent to be distressed and anxious due to not having a suitable bed. The response from the occupation therapist was to “put bubble wrap around the bed” which is not acceptable at all from a ‘professional’ in charge of Kaylans needs. I am currently sharing a single bed with Kaylan in order keep him safe from falling off and causing himself more injury, this is not ideal for a long term solution, either for myself or for Kaylan.

    The oasis cot bed had been mentioned to ourselves which resulted in a representative coming out with the occupational therapist and letting Kaylan decide colours and even given a prescription for the bed and giving us positivity and hope that Kaylan could have a sense of independence, hope and reassurance of Kaylans’ safety. Now this has all changed and we have now been let down and disappointed by his occupational therapist, even though she had sent hopeful messages about getting the bed. I had a meeting on the 26th of April and not a soul to back my corner and they decided they want Kaylan to go into a low profile bed with no sides at all and just a crash mat to land on if he was to fall (remembering he can’t get himself back up or has very little sight) with sensors under. This was absolutely soul destroying to hear as we are still no further forward and Kaylans safety is still compromised. We are also not allowed baby gates on his bedroom door or stairs. Kaylan doesn’t sleep most of the night and when he does he does a lot of spastic movements in his sleep which causes him to jerk and roll. He also has a lot of over sensory problems which results in him hitting himself, hitting his head and harming himself. That bed is unsuitable and he could really hurt himself not only physically but mentally with not knowing surroundings or able to catch himself from falling. We feel betrayed by the service and they are not taking kaylans safeguarding in hand at all . My child or anyones child should NOT be thrown into danger especially with special needs. Now this is why we are asking for your help to help us raise the £8,600 for the bed we have been quoted for which the representatives have given us.

    To keep Kaylan safe and give him the rest he needs and comfort! Even if it’s 50p or £1 we couldn’t thank everyone enough for the support!

    Updates

    2

    • Kayley thompson1 month ago
      Kayley thompson

      Kayley thompson

      1 month ago
      Update from the Page owner

      WHATTTTTT🙈🙈🙈🙈🙈 Can’t thank everyone enough as I have! Words can’t describe the feeling of some amazing people! Lisa Turnbull and her amazing fundraising from her own back raffles and sponsors what a women! Aswell as Local pubs and community’s donating ! Wow 💚💙💚💙💚💙

      Share this update to help us raise more

    • Kayley thompson2 months ago
      Kayley thompson

      Kayley thompson

      2 months ago

      Thank you so much to everyone who has donated so far! It means so much!💙

      Share this update to help us raise more

    2 months ago

    Kayley thompson started crowdfunding

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    Page last updated on: 5/26/2022 19.27

    Supporters

    100

    • Lisa Turnbull

      Lisa Turnbull

      May 26, 2022

      Fundraising money, thank you everyone who’s bought numbers on my raffles! Will be more to come soon!

      £1,250.00

    • Lambton worm (North Lodge)

      Lambton worm (North Lodge)

      May 25, 2022

      Raised from football card and kind donations thank you so much to everyone and to Graham AKA (chesh)x❤

      £300.00

    • Ashleigh

      Ashleigh

      May 25, 2022

      For the most gorgeous boy! You’re going to smash this💙Love Ashleigh, David and Jack xxx

      £30.00

    • Rachael Marshall

      Rachael Marshall

      May 22, 2022

      Donated from Prison Officers. We raised money by having a non uniform day on our training course and would love to help you.

      £77.00

    • Kayley d  thompson

      Kayley d thompson

      May 21, 2022

      KAYLANS FUNDRAISING NIGHT! Thank you to each one of yous that came! We can’t thank everyone enough! Absolutely amazing!❤️❤️❤️❤️

      £1,500.00

    • Anonymous

      Anonymous

      May 21, 2022

      Good luck with the fundraising for your sweet little boy ⭐️Xx

      £30.00

    • Deborah Ainsworth

      Deborah Ainsworth

      May 21, 2022

      Such a worthy cause. Sorry I couldn't make it to your event I hope it all went well. Xxx

      £10.00

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    Kayley thompson

    Kayley thompson

    Newcastle

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