Kiarash like you and me just wants to olay in the sunshine with his family and friends but from birth minute by minute his life has been blighted by spinal muscular atrophy (,SMA) a rare unique and deadly life limiting illness. This genetic disease attacks nerve cells called motor neurons in the spinal.cord

These cells communicate with the voluntary muscles - the ones you can control, like in your arms and legs.

But as the neurons die, the muscles weaken.

Assistance and money is required to help give Kiarash therapy to relieve him from his ailments, the cure is rare , difficult to get and frighteningly expensive and remains but a dream.

The illness is debilitating both physically and mentally with no breaks or remissions from the symptoms and SMA continues to downgrade is abilities day by day.

With nothing to look forward too Kirash feel like he is the only one in this world this way. he makes a brave heart when playing with friends.Unable to fully play in a way a child should.

He is unable to crawl, sit up, take some of his first steps or even control his head movements. Eventually it will affect his breathing and ability to swallow food. This is not a life for any child to live.

With time he will begin to struggle to make basic movements, and with SMA affecting his ability to chew, swallow and eat, he will begin to lose weight and his organs will give up.

Kiarash is missing out on some of the most important developmental stages of his life. He is unable to play and explore the world like other 19 month olds. He is being held back by his condition and has only been given 4 months to live by his doctors.

Kiarash is one of many children suffering from SMA but he currently lives in Iran and needs as much help as he possibly can. His family are unfortunately unable to afford to pay for his full treatment.

Children with SMA are given a life expectancy of 18 months unless pharmacological treatment is introduced.

You can help Kiarash get closer to the treatment he needs just by sharing this post with friends, family, colleagues.

His bravery mask that he is afraid to see his mum dad cry, afraid that all their happiness and hopes will pass as their only child.

The answer is out there but not within their reach.

Of the £1m needed, £3,500 is all his family can afford.

This is not enough even to get him some respite in hospital.

Please give what you can and give him a reason to smile even if for a little while.

UPDATE 06 JULY 2021

Hi everyone thank you for you support

We are asking a big favour as Kiarash has only 2 months to have the treatment to save his life, that favour/challenge is to get 2 million people to help by £1 pound each, to help reach the cost of treating Kiarash.

Each small help will help realise the bigger help that Kiarash requires.