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Keep Billy Alive raised £5,210 from 134 supporters

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Closed 03/09/2016

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£5,210raised of £300,000 target by 134 supporters

    Weʼve raised £5,210 to Help Billy recieve life saving treatment

    United Kingdom
    Funded on Saturday, 3rd September 2016

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    Story

    Billy is a litte boy, now nearly 11 years old. He was sent home to die by the clinicans at RVHB, age 8mths old. Billy suffers from intractable epilipsy and status epilipticus. We couldnt give up on him, we reasearched and found a doctor in America who said he could help. The cost £250,000.00. We launched a mammoth fundraising campaign and raised the much needed funds. The doctor saved Billys life.While in the states the doctor recommeneded we get Billy into intense Physio Therapy and see what we could tease out of Him, Billy had 20hrs of Physio per week for 2 years in the states. The physio team taught him how to hold his own head, sit, crawl , stand and walk. A miracle

    Nearly 9 years on , sadly Billys seizures have returned.We have tired to go down every avenue to get Billy urgently reviewed by an expert, in his condition, an Epiltolgist and to access the nessary diagnostics and life saving treatment that Billy needs urgently, UK and EU But to no Avail, due to long waiting list 6/9mths. Billy does not have that time.

    It si hear breaking watching the seizures take over hs wee body, they leave him completly depleted. Billy is already starting to show regression, his mouth muscles are becoming very weak and his rght eye is starting to turn in slightly, this is the damge that the seizures can do if not treated urgently. I really fear he will loose all he has learnt, or a seizure will take his wee life.

    After much thought we have decided to take Billy back to the States to Dr.Nordli. We know if Billy has any chance of survivl he is the man to help. Billy could also be canditate for surgery. The estimated cost, £300,000.00.

    Every penny counts, no matter how littel, please help us Keep Billy Alive. Thank you in advance.

    Updates

    12

    • Keep Billy Alive2 years ago
      Keep Billy Alive

      Keep Billy Alive

      2 years ago

      George and Paula Canning, handing over cheque to trustee. An amazing £1042.00 raised. A big thanks guys. Xxx

      Update from the Page owner

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    • Keep Billy Alive2 years ago
      Keep Billy Alive

      Keep Billy Alive

      2 years ago

      Update from the Page owner

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    • Keep Billy Alive2 years ago
      Keep Billy Alive

      Keep Billy Alive

      2 years ago

      Update from the Page owner

      Share this update to help us raise more

    2 years ago

    Keep Billy Alive started crowdfunding

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    Page last updated on: 9/3/2016 8:39 PM

    Supporters

    134

    • Khadija Priestley

      Khadija Priestley

      Sep 3, 2016

      £20.00

    • Anonymous

      Anonymous

      Sep 3, 2016

      Best wishes xx

      £50.00

    • Anonymous

      Anonymous

      Sep 2, 2016

      £30.00

    • Anonymous

      Anonymous

      Sep 2, 2016

      £30.00

    • Jason Gerrity

      Jason Gerrity

      Sep 2, 2016

      You can do it billy all the best xx

      £50.00

    • Sally

      Sally

      Sep 2, 2016

      £10.00

    • Simon Kneale

      Simon Kneale

      Sep 2, 2016

      Be strong Billy. You can do this. The force is with you. Just wish I old give more.

      £10.00

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    Keep Billy Alive

    Keep Billy Alive

    United Kingdom

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