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Robyn Jones raised £665 from 11 supporters


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Closed 22/01/2018

raised of £2,000 target by 11 supporters

    Weʼve raised £665 to enable Beth to attend the Boaz Project for one day a week

    Rotherwick, United Kingdom
    Funded on Monday, 22nd January 2018

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    My daughter Beth, age 22, has a neurodegenerative rare disease called Ataxia Oculomotor Apraxia 1. This started when she was two and gradually she lost physical skills and developed a learning disability, epilepsy, visual impairment and other disabling symptoms. Since the age of 9 she has been using a wheelchair full-time. Beth will unlikely ever be able to have a job and so our hopes for her is that she fills the remainder of her life with fun and stimulating activities.

    Since April 2017 she has been attending The Boaz Project in Hampshire one day a week, a wonderful organisation that helps young adults with disabilities to achieve greater independence whilst undergoing activities to give them a sense of achievement and fulfilment. It costs £58 a day for her to attend. Up until now we have been able to manage to fund this but now we are struggling. Beth's disability benefits are taken by the government to go towards her care so she is left with only £23 a week to live as a young person would like to live.

    Beth loves going to Boaz. She has made a tray for her power wheelchair, a bird box, a beautiful tea cup and saucer for me. It breaks my heart that she may not be able to continue to go. So I am asking for help. I don't do it very often but this is very important to her and us. She deserves to be able to "do" something she enjoys. She is the bravest person I know, who has been through so much but continues to smile. We don't know how long she will be with us but if we can keep her smiling, we will do everything we can do make that happen.

    Any donation you can make to help would be so appreciated.

    Many thanks

    Robyn (Beth's Mum)



    Robyn Jones

    Updates appear here

      3 years ago

      Robyn Jones started crowdfunding

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      Page last updated on: 9/29/2017 20.15



      • Jessica Parry

        Jessica Parry

        Sep 29, 2017

        Best of luck with the fundraising. Xx


      • Katrina Howells

        Katrina Howells

        Sep 26, 2017

        Really hope you get what you need for this xxx


      • Julia Carter

        Julia Carter

        Sep 24, 2017

        Love you Sis xxx


      • Esther Towner

        Esther Towner

        Sep 24, 2017

        Here's a couple of days xx


      • Anonymous


        Sep 24, 2017

      • Fiona


        Sep 24, 2017

        Hope this works out for you all 😊.

      • Christine Anderson

        Christine Anderson

        Sep 24, 2017

        Enjoy Beth! I love seeing pictures of the things you do. Such a shame there's not more support x


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      About the fundraiser
      Robyn Jones

      Robyn Jones

      Rotherwick, United Kingdom

      Having a child who is well for nearly two years then suddenly starts to lose skills has both hurt and strengthened me. As a child she has access to lots of funded activities but as an adult this mostly stops. She may not live until tomorrow so today I strive to make her happy.

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