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£155raised of £1,000 target by 9 supporters

Weʼre raising £1,000 to portable AED (automated external defibrilator) for my two children of 2 and 5 years with LONG QT SYNDROME

Carlisle, UK

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Story

Raising funds for a portable AED (automated external defibrilator) for my two children of 2 and 5 years.

I have two daughters, Emma and Mia who both have a congenital heart condition called LONG QT SYNDROME.

LQTS is an inherited condition in which the heart rhythm has disturbances. This shows up on an ECG as a lengthened QT interval, this is essentially where the heart rests for a period of time between beats and with LQTS this rest period is far too long.

The most common symptoms of LQTS are blackouts and palpitations, caused by the lengthened at interval.
Lqts occurs in about 1 in 2,000 people. Unfortunately my daughters are part of this statistic.

Excersize and the heat has a very negative impact on my children's health, causing blackouts for which they have to be hospitalised immediately.

Being able to purchase a portable AED would make a indescribable difference to my children's quality of life. at the moment family days out, even a nature walk pose a huge risk of sudden cardiac arrest due to increased activity, this in turn means that we must always be in the vicinity of a fixed AED of which there are very few in the area. A portable AED would mean that my children could experience the world like their peers and enjoy their childhood, visit the beach and build a sandcastle, go on a school trip etc. The simple things in life that most people think twice about doing.

We have multiple appointments with their cardiologist in Newcastle which is a long way from home, traveling is hard with little children anyway without the added stresses of heart conditions on top.

Being a single parent family the cost of a portable AED is quiye simply beyond our reach, I am hoping through this page that we may just be lucky enough to raise the funds needed.

The cost of an AED is just under £1000.
This is the one thing that could save my childrens lives in the event of sudden cardiac arrest.

Thank you for reading our page

our little heart family
Kerry, Emma and Mia

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Updates

10

  • Kerry grant19 days ago
    Kerry grant

    Kerry grant

    19 days ago

    The local pharmacist really should get to know her facts before spouting absolute nonsense over something as serious as Long QT syndrome. If they don't know I would much rather they just admitted it!! Unfortunately this is exactly how serious mistakes can be made.

    Share this update to help us raise more

  • Kerry grant20 days ago
    Kerry grant

    Kerry grant

    20 days ago
    Update from the Page owner

    An excellent fundraiser by two amazing girls! I have the best friends and family anyone could wish for x

    Share this update to help us raise more

  • Kerry grant22 days ago
    Kerry grant

    Kerry grant

    22 days ago
    Update from the Page owner

    Share this update to help us raise more

1 month ago

Kerry grant started crowdfunding

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Page last updated on: 8/17/2018 11:10 AM

Supporters

9

  • Sharon Stirzaker

    Sharon Stirzaker

    Aug 17, 2018

    Hope you can raise your target xx

    £5.00

  • Cerrie-Ann Hollie

    Cerrie-Ann Hollie

    Jul 30, 2018

    £20.00

  • phaedra gornall

    phaedra gornall

    Jul 28, 2018

    💜

    £20.00

  • Fiona Tuckfield

    Fiona Tuckfield

    Jul 25, 2018

  • Stacy

    Stacy

    Jul 22, 2018

    Love u n girls so much xx

    £10.00

  • MAMA Michele

    MAMA Michele

    Jul 22, 2018

    Keep going hun xxxx

    £50.00

  • Andrew MacLeod

    Andrew MacLeod

    Jul 21, 2018

    I wish I could make it more.

    £20.00

Kerry grant

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About the fundraiser
Kerry grant

Kerry grant

Carlisle, UK

I'm a single parent with 2 young daughters with a congenital heart condition. Our lives are extremely limited by this but we still try to make the best of a bad situation. I would love for my children to have a "normal" childhood

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