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£195raised of £1,000 target by 12 supporters

Weʼre raising £1,000 to purchase a portable AED (automated external defibrilator) for my two children of 2 and 5 years suffering from LONG QT SYNDROME.

Carlisle, UK

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Story

Raising funds for a portable AED (automated external defibrilator) for my two children of 2 and 5 years.

I have two daughters, Emma and Mia who both have a congenital heart condition called LONG QT SYNDROME.

LQTS is an inherited condition in which the heart rhythm has disturbances. This shows up on an ECG as a lengthened QT interval, this is essentially where the heart rests for a period of time between beats and with LQTS this rest period is far too long.

The most common symptoms of LQTS are blackouts and palpitations, caused by the lengthened at interval.
Lqts occurs in about 1 in 2,000 people. Unfortunately my daughters are part of this statistic.

Excersize and the heat has a very negative impact on my children's health, causing blackouts for which they have to be hospitalised immediately.

Being able to purchase a portable AED would make a indescribable difference to my children's quality of life. at the moment family days out, even a nature walk pose a huge risk of sudden cardiac arrest due to increased activity, this in turn means that we must always be in the vicinity of a fixed AED of which there are very few in the area. A portable AED would mean that my children could experience the world like their peers and enjoy their childhood, visit the beach and build a sandcastle, go on a school trip etc. The simple things in life that most people think twice about doing.

We have multiple appointments with their cardiologist in Newcastle which is a long way from home, traveling is hard with little children anyway without the added stresses of heart conditions on top.

Being a single parent family the cost of a portable AED is quiye simply beyond our reach, I am hoping through this page that we may just be lucky enough to raise the funds needed.

The cost of an AED is just under £1000.
This is the one thing that could save my childrens lives in the event of sudden cardiac arrest.

Thank you for reading our page

our little heart family
Kerry, Emma and Mia

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Updates

13

  • Kerry grant1 day ago
    Kerry grant

    Kerry grant

    1 day ago

    After seeing the specialist a few weeks ago, he believes my eldest daughter is showing worrying symptoms when there is a sudden loud noise. Due to this she is now being trailed on medication to help control symptoms. This however, will not prevent a sudden fatal cardiac arrest, there is no cure, no magic pill. Everything is just so all consuming, all encompassing sometimes it's difficult to get through the fog. Thank you for your support, it means the world!

    Share this update to help us raise more

  • Kerry grant3 months ago
    Kerry grant

    Kerry grant

    3 months ago
    Update from the Page owner

    Share this update to help us raise more

  • Kerry grant3 months ago
    Kerry grant

    Kerry grant

    3 months ago
    Update from the Page owner

    Share this update to help us raise more

5 months ago

Kerry grant started crowdfunding

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Page last updated on: 12/16/2018 3:09 AM

Supporters

12

  • Anonymous

    Anonymous

    Sep 27, 2018

    Xx

    £20.00

  • Rebecca Greenhow

    Rebecca Greenhow

    Sep 4, 2018

    Not a lot but hope this helps love you all loads anuty becky and uncle Jim xx xxx

    £10.00

  • Daman Henderson

    Daman Henderson

    Sep 4, 2018

    Every little helps, hope you hit the target for your kids xxxxx

    £10.00

  • Sharon Stirzaker

    Sharon Stirzaker

    Aug 17, 2018

    Hope you can raise your target xx

    £5.00

  • Cerrie-Ann Hollie

    Cerrie-Ann Hollie

    Jul 30, 2018

    £20.00

  • phaedra gornall

    phaedra gornall

    Jul 28, 2018

    💜

    £20.00

  • Fiona Tuckfield

    Fiona Tuckfield

    Jul 25, 2018

Kerry grant

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About the fundraiser
Kerry grant

Kerry grant

Carlisle, UK

I'm a single parent with 2 young daughters with the congenital heart condition LQTS. Living with the threat of sudden fatal cardiac arrest from something as simple as a sudden loud noise (such as a knock on the door) is terrifying. Help me save my children's lives.

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