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Kerry grant raised £260 from 17 supporters

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Closed 22/04/2019

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£260raised of £1,000 target by 17 supporters

    Weʼve raised £260 to purchase a portable AED (automated external defibrilator) for my two children of 2 and 5 years suffering from LONG QT SYNDROME.

    Carlisle, UK
    Funded on Monday, 22nd April 2019

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    Story

    Raising funds for a portable AED (automated external defibrilator) for my two children of 2 and 5 years.

    I have two daughters, Emma and Mia who both have a congenital heart condition called LONG QT SYNDROME.

    LQTS is an inherited condition in which the heart rhythm has disturbances. This shows up on an ECG as a lengthened QT interval, this is essentially where the heart rests for a period of time between beats and with LQTS this rest period is far too long.

    The most common symptoms of LQTS are blackouts and palpitations, caused by the lengthened at interval.
    Lqts occurs in about 1 in 2,000 people. Unfortunately my daughters are part of this statistic.

    Excersize and the heat has a very negative impact on my children's health, causing blackouts for which they have to be hospitalised immediately.

    Being able to purchase a portable AED would make a indescribable difference to my children's quality of life. at the moment family days out, even a nature walk pose a huge risk of sudden cardiac arrest due to increased activity, this in turn means that we must always be in the vicinity of a fixed AED of which there are very few in the area. A portable AED would mean that my children could experience the world like their peers and enjoy their childhood, visit the beach and build a sandcastle, go on a school trip etc. The simple things in life that most people think twice about doing.

    We have multiple appointments with their cardiologist in Newcastle which is a long way from home, traveling is hard with little children anyway without the added stresses of heart conditions on top.

    Being a single parent family the cost of a portable AED is quiye simply beyond our reach, I am hoping through this page that we may just be lucky enough to raise the funds needed.

    The cost of an AED is just under £1000.
    This is the one thing that could save my childrens lives in the event of sudden cardiac arrest.

    Thank you for reading our page

    our little heart family
    Kerry, Emma and Mia

    Updates

    15

    • Kerry grant5 months ago
      Kerry grant

      Kerry grant

      5 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Kerry grant5 months ago
      Kerry grant

      Kerry grant

      5 months ago
      Update from the Page owner

      A massive thank you to everyone who gas donated so far. Over 25% raised so far, well done guys!

      Share this update to help us raise more

    • Kerry grant7 months ago
      Kerry grant

      Kerry grant

      7 months ago

      After seeing the specialist a few weeks ago, he believes my eldest daughter is showing worrying symptoms when there is a sudden loud noise. Due to this she is now being trailed on medication to help control symptoms. This however, will not prevent a sudden fatal cardiac arrest, there is no cure, no magic pill. Everything is just so all consuming, all encompassing sometimes it's difficult to get through the fog. Thank you for your support, it means the world!

      Share this update to help us raise more

    1 year ago

    Kerry grant started crowdfunding

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    Page last updated on: 2/14/2019 10.16

    Supporters

    17

    • Stacey Borradaile

      Stacey Borradaile

      Jan 29, 2019

      Hope this helps! X

      £10.00

    • Sammy Stephenson

      Sammy Stephenson

      Jan 27, 2019

      Sorry I can't help the girls more xx

      £10.00

    • Sam Lennon

      Sam Lennon

      Jan 20, 2019

      £10.00

    • mary baty

      mary baty

      Jan 19, 2019

      Its only a small amount but i hope it helps, I,m fighting cancer myself at the moment and only on my pension or i would gladly give you more

    • Anonymous

      Anonymous

      Jan 7, 2019

      £30.00

    • Anonymous

      Anonymous

      Sep 27, 2018

      Xx

      £20.00

    • Rebecca Greenhow

      Rebecca Greenhow

      Sep 4, 2018

      Not a lot but hope this helps love you all loads anuty becky and uncle Jim xx xxx

      £10.00

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    About Crowdfunding
    About the fundraiser
    Kerry grant

    Kerry grant

    Carlisle, UK

    I'm a single parent with 2 young daughters with the congenital heart condition LQTS. Living with the threat of sudden fatal cardiac arrest from something as simple as a sudden loud noise (such as a knock on the door) is terrifying. Help me save my children's lives.

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