I'm not going to write a compelling story, people jus please just dig deep. It is a disease that has a lot less funding than other diseases and we need to be doing more.
People are losing their lives within 3 to 5 years after diagnosis as there is no known cure. Yes that's right no known cure. So people who get diagnosed they have limited drugs to sustain their lives and that's about it, you are in the hands of the 'God's to how long you may have. You can be quick to succumb to this or you may be 'lucky' and last a lot longer.

Please let's raise awareness for this truly awful disease. Please just £1.