My daughter Elsie is five and three quarters and we are hoping to raise money to build a garden room at home for her to be able to continue her rigorous physiotherapy. Elsie has a severe deformity of her lower limb, hypotonia (low muscle tone) Hypermobility and thoracolumbar hydromyelia. She also has an undiagnosed neurological condition and shares symptoms with diseases such as ehlers-danlos syndrome and tethered cord syndrome to name but two. She’s facing many painful operations, leg lengthening, a fixed frame, not to mention the impact this has on the rest of her body. Her knee, hips and back are put under enormous stress. Every minute of physiotherapy we can do now will improve her life forever. Dramatic as it sounds, I can’t expeess how important this is for us. We work hard, we’ve saved hard.

Every penny in her fund will make a massive difference for her