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£1,465raised of £1,500 target by 32 supporters

Weʼre raising £1,500 to support #MEAction in the fight for equality, recognition, and long-term research, policy and cultural change for ME.

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Story

Back in 2013, I was diagnosed with ME (Myalgic Encephalomyelitis). ME, also known as Chronic Fatigue Syndrome (CFS), remains as mysterious as it was when it was first recorded in Britain in the 1950s; yet it is estimated that around 15-30 million people around the world are suffering from this devastating illness that causes dysfunction of the neurological, immune, endocrine and energy metabolism systems.

The symptoms, in my case, include migraines, nausea, sore throat, debilitating exhaustion, and its evil twin, insomnia. Other sufferers have it much worse with crippling body pains that leave them in bed for months or, in some cases, years. The worst part is that this cocktail of symptoms is hard to diagnose and often overlooked by GP’s. This means the illness carries a stigma. When an ME sufferer explains that they are tired or unwell, it’s hard for those who don’t know the illness to not think the sufferer is depressed or worse, lazy. This can be very painful as it adds to the loneliness of those trying desperately to recuperate.

On the 12th May, 2018, my husband Kevin and I attended a demonstration in London led by #MEAction, a global grassroots network for people with ME. Not knowing what to expect, we were heartbroken by the stories of parents, children, brothers, sisters, grandparents, nephews … whose lives have been stolen by the illness. The campaign was called #MillionsMissing as a tribute to all those people who are unable to leave their home.

We decided it was important to do something for all those people who are not as lucky as I am; people whose ME is so bad that they are bedridden; people who have no access to the right level of treatment and care, living a very lonely existence, or facing a very slow, painful death … yes, there are people actually dying from the aggravation of symptoms resulting from ME, which was a shocking discovery for me.

This is why on the 8th July, Kevin and my children Kika and Mylo will be joining me in the Colour Run Hero Tour. A fun 5k event in Wembley Park where we will be walking, dancing and doing a bit of running in the name of all those heroines and heroes who very courageously live with ME day in, day out.

Any money raised will go to #MEAction so they can continue their indispensable work in the fight for equality, recognition, and long-term research, policy, and cultural change for ME. You only have to take a look at the outcome of the first-ever ME debate in Parliament last week to understand the importance and impact of their work.

#MEAction is currently looking to raise £55,000 so they can hire an on-the-ground, UK organiser for advocacy, campaigns and medical outreach. With your support, we can help them make a big difference by giving those less fortunate a voice.

Thank you for taking the time to read, your support means a lot.

I leave you with this moving TED talk by Jennifer Brea, co-founder of #MEAction and director of Unrest, an award-winning documentary about ME.

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Landa Acevedo-Scott

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    2 months ago

    Landa Acevedo-Scott started crowdfunding

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    Page last updated on: 7/18/2018 9:13 AM

    Supporters

    32

    • Esnayder  cuartas

      Esnayder cuartas

      Jul 18, 2018

      un abrazo gigante

      £20.00

    • Anonymous

      Anonymous

      Jul 16, 2018

    • Yolanda Acevedo

      Yolanda Acevedo

      Jul 15, 2018

      £50.00

    • Rachel, Seb, Jacob and Freddie. Xx

      Rachel, Seb, Jacob and Freddie. Xx

      Jul 14, 2018

      😘

      £20.00

    • Georgina Evans

      Georgina Evans

      Jul 14, 2018

      Landa, thanks for sharing your story and the fabulous photos - what fun - you’re an inspiration!Sending love Georgina

      £30.00

    • katherine skala

      katherine skala

      Jul 13, 2018

      We're delighted to be helping you reach the target for this very worthy cause.

      £50.00

    • Camilla Brackstone

      Camilla Brackstone

      Jul 12, 2018

      Fab pictures Landa. Well done the Acevedo Scotts!

      £30.00

    Landa Acevedo-Scott

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    About the fundraiser
    Landa Acevedo-Scott

    Landa Acevedo-Scott

    London, UK

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