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£699raised of £5,000 target by 33 supporters

Weʼre raising £5,000 to Raise money for physio and other therapies and equipment not provided by the NHS following SDR surgery to help me walk as an adult.

Manchester, UK

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Story

PLEASE READ MY STORY AND DONATE IF YOU CAN!!! I'M NOT ASKING FOR A LOT, BUT AS LITTLE AS £2 FROM MANY COULD CONTINUE TO CHANGE MY LIFE FOREVER!! - MANY THANKS :-) XXX

My name is Laura and my age is 39 yrs. I have the disability Spastic Diplegia Cerebral Palsy. As a result of a premature birth. I was born 9 weeks early and as a result I have been confined to a wheelchair all my life.

I found out there was an operation called SDR (Selective Dorsal Rhizotomy ) This is a neurosurgical operation on the spine which can help eliminate the stiffness (spasticity) that cerebral palsy causes affecting movements. After a two year long battle and more red tape than you can ever imagine the surgery was finally granted, and took place at The Walton Centre in Liverpool on 6th October 2014. This operation is most commonly offered to children. I am currently one of the oldest people in the UK to have had SDR surgery performed and carried out at a UK hospital.

The outlook before the surgery was very bleak, although Cerebral Palsy is not described as being a progressive condition stiffness can worsen over time and in my case I was losing all the abilities I fought so hard all my life to have. To put it bluntly things got so bad that I couldn't even transfer anymore. I found the operation, researched it for two years before asking to be assessed and I was convinced it was the right option, maybe even the only option available to me to be able to get any quality of life back. Finding the surgery in the first place it was as if it was meant to be, the chance of a life time for sure.

My surgery lasted over 7 hours but you could see an almost immediate difference in my levels of stiffness and the way my limbs moved. I was in hospital for 9 days and then slowly as I recovered it was time for the hard work to begin. It was like starting from the beginning because the stiffness I had become dependent on for any function at all was no longer there.

We knew that extensive physio therapy/rehabilitation would be required following this but little did we realise I would receive no NHS physio at all following this surgery. The operation was a success but we knew I would not show any benefits if the strict rehabilitation programme was not followed.

The success and anything that happened next was down to me, my family and those who cared and wanted to help and see me succeed. Like many families we have been forced to fundraise in order to get what I need and realise the full benefits from the SDR operation. Thanks to everyone for pulling together we just about managed to pull this off and thanks to SDR my life is virtually unrecognisable from what it was.

Due to a life time of stiffness and the problems that it caused, more surgery was required. In the time following SDR Surgery I have had 4 further procedures. Hamstring lengthening, both legs, achilies tendon lengthening in my right leg. In May 2016 I had achilies tendon lengthening on my left leg, they also did a tendon transfer and a tendon graft. The most recent surgery was to my foot and big toe in August 2017 and I am now the proud owner of some screws and double staples. I went to see my surgery consultant in June of this year (2018) and I am currently on the waiting list for more surgery to my legs. This will improve the way I am able to walk and make it a lot easier. My pre-op is set for August - I think you will agree this is a lot for anyone to go through but when I said the SDR surgery was a chance of a life time I truly meant it and promised myself, my family and the surgeon I would do anything in my power to get the best possible results.

Once again following the Surgery in August 2017 we received very little NHS input post-op and we realised once again the success of this surgery, just like the SDR was completely down to us so the fundraising continued. I am gradually getting back all the abilities I had and lost, and a lot more, but this is only because of the help I have received from people like you and I and my family will always be forever grateful for this.

More surgery is due to take place this year (2018) and at the moment it looks like it will mirror the other surgeries post-op with very little or no NHS input once again

Thank goodness I found the private clinic and that I have been able to take part in therapy the way I have. Otherwise I would of been in an even worse position then before. However I now have a problem, fundraised money is running out and we only have enough money left for 1 months therapy.

I have a very long way to go but can continue to improve with continued rehabilitation. It has even been said that I could one day walk independently, imagine that!!! I wish we could fund this ourselves and that we didn't need other people to help us but sadly we can't and that is why I am appealing for continued support.

I have thought about quitting but the more I achieve the more I can't bring myself to do it. I don't want big things in life just simple little things people take for granted every day. A walk in the park, to step on a beach to kick the autumn leaves, any help received can give me all these things. Please put yourself in my shoes just for one second, imagine what it would be like to do these things for the very first time ever!! Please pay a part in my continued journey.

I need rehabilitation therapy for the next 3 years at least. This is currently costing around £1150 per month. I am truly grateful for every little bit of help I receive without this I know I wouldn't have got to the point I have now. If I continue to get the help I still desperately need and very much want I promise I will continue to post updates and keep you all informed of my progress.

To learn more and see photos and videos of my progress visit my Facebook page https://www.facebook.com/Lauras-Wish-SDR-Dream-366637163491137/

Thank you for reading, Laura :-) xxx

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Updates

14

  • Laura Jane Ramsden20 days ago
    Laura Jane Ramsden

    Laura Jane Ramsden

    20 days ago

    Standing at the private physio clinic on 23/07/2018. Please help me fund more therapy sessions and equipment so that I can continue in my journey - Thank you xxx

    Update from the Page owner

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  • Laura Jane Ramsden20 days ago
    Laura Jane Ramsden

    Laura Jane Ramsden

    20 days ago
    Update from the Page owner

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  • Laura Jane Ramsden24 days ago
    Laura Jane Ramsden

    Laura Jane Ramsden

    24 days ago

    Thank you for the donations over the last few days. This means I am now at 11%of my current target. :-) On Friday 13th July I had muscle injections to my eye to help correct my vision. It appears to be working so far if it continues to I should eventually be listed for corrective surgery. My next appointment at the eye hospital to check results so far is 30th July. Pre-op date for 9th August 8.15am I will really struggle to get there at this time. trying to get later appointment, will Keep you posted. Please keep donating, Laura xx

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3 months ago

Laura Jane Ramsden started crowdfunding

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Page last updated on: 8/11/2018 5:30 PM

Supporters

33

  • Anonymous

    Anonymous

    Aug 11, 2018

    From Ann.

    £2.00

  • Deborah Middleton

    Deborah Middleton

    Aug 6, 2018

    Keep going Laura. You're an inspiration to us and Ben.

    £5.00

  • Natasha Dawson

    Natasha Dawson

    Aug 1, 2018

    £10.00

  • Anonymous

    Anonymous

    Aug 1, 2018

    From a friend of Josh

    £50.00

  • Raymond Farragher

    Raymond Farragher

    Jul 31, 2018

    August sorted. Love from C and E

    £30.00

  • Anonymous

    Anonymous

    Jul 29, 2018

    For wristband

    £2.00

  • Chloe O'Hare

    Chloe O'Hare

    Jul 24, 2018

    £6.00

Laura Jane Ramsden

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About the fundraiser
Laura Jane Ramsden

Laura Jane Ramsden

Manchester, UK

Hi , My name is Laura. I'm aged 39 yrs and have Spastic Diplegia Cerebral Palsy. I've been a wheelchair all my life. SDR surgery has given me the chance to walk for the first time as an adult. I need to raise funds to pay for physio & equipment not provided by the NHS. Pls help.

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