Well where do I start,
due to a previous preterm labour resulting in the loss of my dear son Josiah,with Elliott I had scans everyweek with a few complications but during a scan at 28 weeks there was a mass found on one of Elliotts lung abutting the right pulmonary vein on the lower lobe of his right lung at first it was noted as a congenital pulmonary airway malformation (CPAM) he was born at 37 weeks via induction as they didn't think it was safe for him to be born any later ,On May 8th 2018 He was finally born at 11.26 am he was rushed off pretty much straight away then spent 3 days in intensive care With jaundice and suspected sepsis and 5 days in transitional care with me we were then discharged home to come back for a CT scan as an outpatient.
The CT scan showed the mass was not infact looking like one of a CPAM But closer towards a duplication cyst of the oseophegus they was talking surgery but more tests had to be done so within a week we had an MRI Booked at Kings College Hospital that MRI wasn't clear as Elliott wasn't still enough so imagery was unclear so he was then referred to great ormand street hospital for children to be put to sleep to redo the MRI, urine sample taken and bloods too we then went home and waited for the results later that same evening I received a call from the consultant saying they needed a biopsy of the mass as it's not looking like one of a duplication cyst neither at that point I was so confused more blood tests were to be done within a few days He was admitted to GOSH then put to sleep for a biopsy he developed an infection during the op so we ended up spending 6 days in hospital during this time the results came back as it's a rare form of cancer called neuroblastoma that only affects children I was planning to take him abroad but I have to have insurance for him which is expensive as his immune system is low and may need hospital care I may not be able to fix it but I can give him the best life I can if our time is short.