109%
£7,665raised of £7,000 target by 64 supporters

Weʼre raising £7,000 to build a sensory room for a little baby who has an undiagnosed brain condition as well as auditory neuropathy spectrum disorder

Location
Telford, United Kingdom

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Story

Leila was born on 13/05/2017 weighing 4lb 15oz, her mothers pregnancy and labour was absolutely perfect. Leila was born at 38+1 weeks after being induced due to being small in size.

At 16 hours old Leila was moved into the Neonatal Unit as she had low blood sugars, this was corrected by being fitted with an ng tube.
At 3 days old Leila was moved into the intensive care unit due to jerking movements that needed to be monitored in case this was convulsions. Due to these movements she had an ultrasound of the head, which confirmed she had a bleed on the brain which was weeks old so starting during the womb. An MRI scan was done at 9 days old, this scan confirmed that Leila's brain hasn't formed properly and the bits that had was very immature for her age. Since then she has been subjected to many tests and scans, due to her age it's difficult to get a diagnosis and her family are still waiting for answers.
Leila has been nil by mouth since she was 2 weeks old as she doesn't have the coordination to swallow her milk so will in future be fitted with a direct feeding line to her stomach.
Leila has an auditory neuropathy spectrum disorder.
She see's many specialists including care nurses, consultants, physiotherapy, speech and language therapist, hearing specialists, development doctors, brain specialists and genetics.
Leila is currently waiting for surgery to fix 2 groin hernias and an umbilical hernia.
Leila also has a shadow on the left kidney which requires more investigation.

We are raising money to build her a sensory room which will help greatly with her brain stimulation with both lights and trying to stimulate her ears the best we can. This is in the hope of giving her the best possible start in life and helping her to develop the best we can

Leila's great uncle (Colin) and friend Jamie both did a sponsored bungee jump which was 180ft high on November 18th.

Leila and her family thank you massively for all your contributions!!

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Updates

6

  • Zara Davis18 days ago
    Zara Davis

    Zara Davis

    18 days ago

    Our first time involved in feeding tube awareness week! Without our ng tube Leila wouldn't be the big strong girl she is today xxxx

    Update from the Page owner

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  • Zara Davis3 months ago
    Zara Davis

    Zara Davis

    3 months ago

    Yesterday was the day of our bungee jump! Over £400 has been raised in sponsors, the full total will be shared soon once all collections are in. We would like to thank Colin for going through with it and Jamie for stepping in at such short notice, you both did amazing!!

    Update from the Page owner

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  • Zara Davis4 months ago
    Zara Davis

    Zara Davis

    4 months ago
    Update from the Page owner

    We did it!! On Saturday we was celebrating Leila's naming ceremony when we was presented with a card from my work, we was told we needed to open it in front of them. So we did... To open up to a cheque of £5330 As you can imagine there was a lot of tears! We would like to personally thank everyone who has donated, this is completely life changing and the support has been overwhelming xxxx

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5 months ago

Zara Davis started crowdfunding

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Supporters

64

  • Anita  Payne

    Anita Payne

    Nov 18, 2017

    £10.00

  • Stephen Ward

    Stephen Ward

    Nov 18, 2017

    A small amount to build a big fund to help your beautiful girl

    £20.00

  • David Brown

    David Brown

    Oct 31, 2017

    Good luck with the fundraising :)

    £50.00

  • MARIA BOLTON

    MARIA BOLTON

    Oct 30, 2017

    For an amazing little girl and her family, wishing on all the stars and the moon for the future xx

    £500.00

  • Liz Murray

    Liz Murray

    Oct 27, 2017

    Wishing you all the best Zara!Liz - Autoscan North Office xx

    £15.00

  • Donna Broadfield

    Donna Broadfield

    Oct 24, 2017

    £20.00

  • John Stoner

    John Stoner

    Oct 23, 2017

    £50.00

About the fundraiser
Zara Davis

Zara Davis

Telford, United Kingdom

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