Our story is about our baby boy Leo Daniel Fish, who we like to call Leo Lion because of his amazing strength and bravery.

Leo had an undiagnosed heart condition at birth, I took Leo to the doctors after 15 days at home because he was not feeding too well and something didn't seem right.

Here the doctor sent me to Wrexham paediatric ward with a suspected viral infection, bronchitis with suspected sepsis.

After a chest x-ray was done, they fund there was a problem with his heart, from here we were rushed by ambulance to the specialist cardiac unit at Alder Hey

Leo was found to have a Hyperplastic aortic coarctation a large VSD and an ASD.

Here over a course of 11 weeks 2 days Leo had 2 open heart surgeries to repair his aortic coarctation and to temporarily fix  a  large  VSD  by  putting  a  band  around  the  pulmonary  artery  to  restrict  blood   flow  until  the  hole  hopefully  closes  as  he  grew.

Leo  made  it  through  all  his  invasive  procedures  and  after  spending  71  days  in  I.C.U  he  was  transferred  to  H.D.U  and  then  the  cardiac  ward.

I  cant  tell  you  how  happy  I was  that  night  when  hey  phoned  to  say  they  were  moving  him  to  the  ward,  as  I  was  staying  at  Ronald  Mcdonald  house  I  ran  down  to  the   ward  at  midnight  in  my  pyjamas   to  spend  his  first  night  with  him  on  the  ward.

After  4  days  on  the ward Leo was unsettled and withdrawing  from  all  his  medication which was normal  but not nice so I stayed with him,   changing  his  nappy in the night and putting his projector on  and  generally  loving  spending  time  with each other.

That  morning  Leo  took  a  turn  for  the  worse  and  despite  every  effort  he  couldn't  be  saved,  this  was  so  unexpected  as  he  seemed  to  have  been  showing  signs  of  improvement,  hence  he  reason  for  being  on  the  ward.

From  the  day  Leo  was  taken  into  hospital  I  told  him  I  would  never  leave  him  and  I  kept  my  promise until the  very  end.

He  was  and  will  always  be  our baby  Leo  Lion  and  my  real  life  hero,  the  fight  he  showed  us  was  incredible  and  will  stay  with  me  forever.

Equipment/bedding  and  toys will be bought in honour of My Leo Lion Foundation

I will make sure Leo's fight  and  bravery will always be known about, as we am proud beyond words

Leo  was  loved  and  known by everyone at Alder Hey and was so popular.

He was and is always perfect to us

Thanks so much to everyone