Weʼre raising £1,000 to help fund major lifestyle changes, treatment and equipment for George to prolong his life by climbing Snowdon on 30.06.18
- Derby, UK
- 11 days to go
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Mark McGowan and myself are supporting our close friends Mark, Jayne and George Gilbert by climbing Snowdon on Saturday 30th June 2018. This is one of many events that will help raise £50,000 to fund major lifestyle changes, treatment and equipment for George to prolong his life living with SMA Type 1.
The Gilbert's Story is below....
It was both Mark and Jayne’s dream to be parents, but this was a challenge for them as they were unable to conceive naturally. After many years, IVF/ICSI was the only option. Miracles do happen and George was born on the 2nd October 2017, Jayne, Mark, family and friends were over the moon on the arrival of a gorgeous, happy, smiley baby boy.
George passed all his 6 weeks checks and Jayne and Mark were preparing for their first Christmas as a family. Sadly, at the beginning of December, George contracted a virus and was extremely poorly, he struggled to eat and was struggling to breathe, so, George was taken to A&E for routine tests and an IV course of antibiotics. It was during this time that consultants became concerned about George’s muscle strength, George was still struggling to swallow and drink which prompted consultants to test George for SMA Type 1.
Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. It causes progressive muscular weakness and loss of movement due to muscle wasting (atrophy). This may affect crawling and walking ability, arm, hand, head and neck movement, breathing and swallowing. SMA Type 1 is the most severe form of SMA. Sadly, without intervention most children with SMA Type 1 rarely survive beyond two years of age.
Spending Christmas and New Year in and out of hospital , Jayne and Mark waited some agonising two weeks for the test results. On the 4th January the results were in and Jayne and Mark received the devastating news that George had the genetic disease SMA Type 1.
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- 2 months ago
Leon Exton-Russell2 months ago
Thank you to everyone that donated. Mark and myself completed the Snowdon climb successfully on Saturday 30th June as planned taking on the mighty Crib Goch trail which was a real experience and not for the faint hearted that’s for sure. We raised around £3,000 for George and his family due to your kindness/generosity. We had £2,000 on here and a further £1,000 on sponsorship forms. Thank you again Leon & Mark 👏🏻👏🏻👏🏻
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Leon Exton-Russell started crowdfunding
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Jul 13, 2018
Top job - hope this helps George
Jul 11, 2018
Jul 10, 2018
Jul 7, 2018
Jul 7, 2018
Well done guys!
Jul 7, 2018
Not bad for a fat lad!
Jul 6, 2018
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