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Leon Ockenden raised £2,615.2 from 72 supporters

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Closed 19/03/2020

26%
£2,615
raised of £10,000 target by 72 supporters

    Weʼve raised £2,615 to help the brilliant http://www.softbonesuk.co.uk

    London
    Funded on Thursday, 19th March 2020

    Don't have time to donate right now?

    Story

    This is Maddox and his mothers Instincts saved his life.

    Maddox was born with the rare disease Hypophosphatasia which undiagnosed be fatal for infants.

    Meryl Iona is an inspirational young woman. A woman I'm lucky enough to call my cousin. This is her's and Maddox's story.

    Meryl sensed there was something more to her new borns constant sickness than was being addressed, and, undeterred by health care professionals who considered her just another 'fussy first time mum' she fought for more tests.

    This persistence saved his life and led to Maddox belatedly being diagnosed with HPP. The disease is rare and not widely understood which meant Meryl and her family had to fight tooth and nail, over many months for him to get the specialist care and medication he needed. There were many sleepless nights when it looked as if the NHS were going to withdraw his medication because it too expensive. But Meryl and Maddox didn't give up because they are fighters.

    Meryl (who, naturally shy, will be embarrassed by me saying all this) is about as selfless and compassionate person as you could wish to meet. She works full time and has a young family but has somehow also managed to found a charity http://www.softbonesuk.co.uk to raise awareness of HPP and ensure suffers get the support and treatment they need.

    Help me to help them and others like them by raising £10,000

    I'm lucky enough to be generally fit and well - and my fundraising efforts are centred around me pushing my self to my physical limits. I shall be running the London Marathon on April 28th, Cycling 100miles in the Ride London event in August and then running NON STOP FOR 24hrs at The Equinox24 event in Leicestershire. If you want to keep up to date with my training and fundraising here are the links to my social media accounts. Please donate what you can afford and share with friends. The world needs more people like Meryl and Maddox so lets get behind them!

    .https://twitter.com/ockenden_leon https://www.facebook.com/LeonOckendenOfficial/ https://www.instagram.com/leonockenden/

    Updates

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    Leon Ockenden

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      3 years ago

      Leon Ockenden started crowdfunding

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      Page last updated on: 9/23/2019 23.09

      Supporters

      72

      • Sherrie Hiner

        Sherrie Hiner

        Sep 23, 2019

        You do some seriously challenging things for charity. Your third place finish at the Equinox 24 run was amazing and your kindness is inspiring.

        £15.00

      • Lewis (coach)

        Lewis (coach)

        Sep 23, 2019

        Brilliant work so far Leon. Hope you fellas have recovered from the Equinox.

        £20.00

      • Rakhi and Dee

        Rakhi and Dee

        Sep 22, 2019

        Go Leon!!!

        £50.00

      • MckAspital

        MckAspital

        Sep 22, 2019

        Well done gents. Love from Jim and Danni

        £24.00

      • The Doolins

        The Doolins

        Sep 22, 2019

        Wahhhhhooo! Epic effort! Well done guys!:)))

        £15.00

      • Val Cawood

        Val Cawood

        Sep 22, 2019

        Well done

        £40.00

      • Brian  Watts

        Brian Watts

        Sep 21, 2019

        The Watts family think you’re awesome 👏!! Xx

        £40.00

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      About Crowdfunding
      About the fundraiser
      Leon Ockenden

      Leon Ockenden

      London

      An actor and parent who will be doing his darnedest to raise money for this brilliant cause,

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