Hi,  I'm Connor, I'm 4 and everyone describes me as a bundle of fun, energy and cheekiness. I was born with lipomyelomeningocele which is really  unfair  because not only is this impossible to pronounce but also to spell!!  It is a form of spina bifida which has caused a large visible fatty mass on my back. This has attached itself to my spinal cord and is slowly pulling on it. I was also born with complex club foot. I've had multiple surgeries to date, I had my Achilles' tendon cut, part of my talus bone removed and most recently I had a metal bar inserted into my lower shin. All kind of ouchey to be honest!!

My lipomyelomeningocele is still pulling on my spinal cord and to make these other operations worthwhile I urgently need more surgery to de-tether the mass from my spinal cord. This will stop any further deterioration and help me to walk. Whoop Whoop!!!! 

Look here's  the deal- I can still rock out  some  amazing dance moves but I am  pretty desperate to run about and  play  football with my older brother Callum and friends. Callum is the most amazing big brother ever, fact! He looks after me, makes me laugh and plays the best games with me but I  really want to be able to play football with him and show him how to put in a proper tackle!! 

The surgery I need  is  not routinely available in Ireland so my mam and dad are fundraising to get me to the amazing doctors at Alder Hay for my surgery. My family are realistic but optimistic about the results from the surgery. My  mam has recently been diagnosed with and undergone treatment for cancer.  She needs the rest so, to relieve some of the fundraising pressure from them, my mam's friends, are helping me organise this page.  They  have lots of fundraising events planned which we will keep you updated on and hope you can attend. Please support  in  any way  you  can to help me achieve something that most  people take for granted.

Thanks, Connor

LETS GET CONNOR WALKING!!! #connorfitz #secretsuperhero