Iʼve raised £150 to continue to reach our goal of giving a family in need a holiday
- Funded on Tuesday, 17th October 2017
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Story
To add to the £340 raised from the previous page
We are a group of social workers determined to raise money following the heart-breaking news one of our student colleagues and her family has recently received.
Although we don't want to name our friend, we hope that this story will reach out and encourage you to donate- no amount is too little and your comments will give the family strength at this difficult time.
Peter (let's call him) is the son of our colleague and friend ( who is a caring, loving, single mum to 3 children). He's 15 and is studying hard to take his GCSE's. Concerned by an increasing number of trips and falls - he was admitted to hospital for tests - he has now been diagnosed with the neurodegenerative disease 'Leukodytophy' - a rare and life limiting illness. This is a devastating diagnosis for this young boy, his very hard working mum and his younger 2 siblings.
Leukodystrophy isn’t just one disease; it’s actually a group of diseases that affect the central nervous system. Currently Peter is undergoing further tests to understand the 'type' of Leukodystrophy he has.
There is no cure for this life limiting disease. Doctors can address the symptoms with medication, physical, occupational, and speech therapy. Some people may need additional help with learning and nutrition, in some cases, a bone marrow transplant can help.
Some of the common symptoms Inc.
• Balance and mobility problems
• Behavioral and learning disabilities
• Bladder issues
• Breathing difficulties
• Developmental delays
• Hearing, speech, and vision problems
• Muscle control disorders
• Seizures
We would like to raise money for a holiday for the family, before life becomes impossible.
the views on this page are the personal views of the author and her colleagues and are not intended to be representative of our profession or the organisation in which we work.
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Supporters
9
Anonymous
Jul 6, 2017
Gemma M
Jun 24, 2017
£60.00
Angela DONNACHIE
Jun 23, 2017
Best wishes to "Peter" and all the family- lots of love Angela
£10.00
Anonymous
Jun 21, 2017
Hope that the donations keep coming in - it's heart-breaking.
Anonymous
Jun 20, 2017
Hope the money raised will bring a smile to you and your family.I haven't met you but have a son who is a Mental Health Nurse
Anonymous
Jun 20, 2017
Want to give another £5 - hope you make as much as you need for a really good holiday.
£5.00
J Salmon
Jun 20, 2017
£10.00
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