Story
Levi is a 5-year-old member of our family from St Davids, Grenada, who is currently in the UK seeking urgent specialist treatment for a large kidney tumour consistent with Wilms Tumour, a rare form of childhood kidney cancer.
His CT scan has identified a large right-sided renal mass measuring approximately 9.2cm at its greatest dimension. The radiologist's report concludes that the findings are consistent with a Wilms Tumour and recommends specialist review at a tertiary paediatric centre.
Levi now needs timely access to specialist paediatric oncology care.
A Significant Change to Our Fundraising Target
We want to be completely transparent with everyone who has supported Levi or shared his appeal.
The family initially understood that treatment in the UK could begin following payment of a £50,000 deposit, with an estimated overall treatment cost of approximately £150,000. However, we have now received the actual invoice from Great Ormond Street Hospital (GOSH), and the financial requirement is substantially higher than the initial estimate.
The original fundraising information stated:
* £50,000 as the anticipated upfront payment required to begin treatment
* £150,000 as the estimated overall cost of treatment
We have now received the actual treatment invoice from GOSH. The invoice for treatment alone is £737,000. This £737,000 would need to be paid upfront before treatment can begin under the current arrangements.
Importantly, this figure does not necessarily represent the full eventual cost of Levi's care. Additional costs could arise if his treatment requires radiotherapy or if emergency medical facilities or additional interventions become necessary. This means that the original £50,000 and £150,000 figures are no longer an accurate reflection of the financial requirement currently facing Levi's family. We are therefore updating this appeal so that everyone supporting Levi understands the true scale of the challenge.
Our Immediate Target Now: £737,000.
We are continuing to establish what the total cost of Levi's treatment and wider care could be, including any additional treatment that may become necessary.
At the same time, Levi's family is urgently exploring whether there are other viable treatment options — within the UK, across the Americas or elsewhere internationally — that could provide him with timely, specialist and clinically appropriate treatment at a feasible cost.
Our priority now is not simply to raise money for one particular hospital. Our priority is to get Levi the treatment he needs, as quickly and safely as possible. Levi is not currently eligible for NHS-funded treatment. NHS guidance states that people who are not ordinarily resident in the UK may be charged for hospital treatment, subject to specific exemptions and circumstances. Where charges apply, estimated costs can be required upfront for planned treatment. This is why fundraising is a critical part of creating a route for Levi to access treatment.
The Cost of Waiting
Wilms Tumour, also known as nephroblastoma, is a rare cancer of the kidney that primarily affects young children. Cancer Research UK reports that around 85 children aged 0–14 are diagnosed with Wilms Tumour each year in the UK, with the disease occurring most commonly in children under five.
Levi's situation is urgent because a suspected Wilms Tumour cannot simply be left untreated. Without appropriate treatment, the tumour can continue to grow and may spread beyond the kidney to other parts of the body, most commonly the lungs, but also the liver, bones or other areas. The stage and characteristics of the tumour determine the treatment required and the likelihood of successful treatment.
The difficult reality is that Levi has already reached the point where specialist treatment is needed. For Levi, the urgency is therefore twofold:
1. He needs specialist assessment and treatment
2. His family needs to secure a viable way of accessing that treatment
There is Hope
Wilms Tumour is a serious and potentially life-threatening cancer, but it is also one of the more treatable childhood cancers.
According to Cancer Research UK, Wilms Tumour is curable in about 9 out of 10 children (approximately 90%). Treatment commonly involves chemotherapy and surgery, with radiotherapy used for some children depending on their individual diagnosis and risk.
That 90% figure cannot predict Levi's individual outcome, because survival depends on factors including the tumour's stage, biology and response to treatment. But it does mean something incredibly important: There is a real possibility of successful recovery.
Levi's cancer is not a situation where there is no hope. There is an established treatment pathway and specialist expertise available to him.
What Levi needs now is timely access to that treatment.
Exploring Every Possible Route in the UK and Beyond
A separate fundraising campaign is already being shared across the USA and Caribbean. Alongside the international support already being generated, we are establishing this UK campaign because Levi is now in the UK and the family have been seeking treatment options here.
Although Levi has been referred to Great Ormond Street Hospital, the family is now actively exploring all viable options for his treatment.
This includes investigating specialist paediatric oncology services:
* elsewhere in the UK
* across the United States and Canada
* elsewhere in the Americas and Caribbean
* and potentially in other countries where appropriate specialist treatment may be available.
This does not mean that any alternative treatment centre has been identified or confirmed at this stage.
It means that, given the scale of the current financial requirement, the family is urgently seeking every feasible route that could allow Levi to receive the treatment he needs.
We are not giving up because one route has become financially difficult. We are looking for another route to the same goal: treatment for Levi. If you have any suggestions, please do get in touch or share on this page.
Every Donation Matters
The size of the current figure can feel overwhelming.
But a large target is built from individual acts of support.
£10.
£50.
£100.
£500.
£1,000.
£5,000.
£10,000.
£100,000.
Every contribution moves Levi closer to a viable treatment option.
At this stage, we need both financial support and connections. If you cannot donate, please share this appeal. A single share could reach someone, somewhere, who is able to make a major contribution.
Our Goal
Current minimum medical funding requirement: £737,000 – to secure the upfront medical treatment cost. This represents the current GOSH invoice for treatment alone.
We are also continuing to seek clarity on any additional costs that could arise during treatment, including potential radiotherapy and emergency or additional medical care.
Our intention is to be transparent rather than to ask people to donate against an outdated figure.
As we investigate alternative treatment options, the required amount may change again. We will provide updates as funds are raised and as Levi progresses through treatment.
It takes a village to raise a child. We invite you to be part of Levi’s village.
Please donate.
Please share.
Please care.
Please help us give Levi the opportunity to fight this cancer.