Our daughter Lexi was born with a congenital heart defect and global development delay. This has resulted in her being wheelchair bound, non-verbal and totally dependant on adult support for all her needs. At 11 years old after what was supposed to be a simple exploratory cardiac procedure (one she has had done previously and recovered from within 24hrs) she had unforeseen complications which left her fighting for her life and spending 6 months in and out of intensive care and a high dependency ward. On New Years Eve 2018, after being discharged from hospital the week before Christmas, her stepdad found her in her bed in respiratory arrest and performed CPR on her. Something no parent would ever dream of having to do! Lexi was rushed into our local hospital and intubated for 10days. She was then an inpatient for a further 5 months before successfully being discharged but now with the added complication of requiring the use of a suction machine to manage her secretions and stop her from choking on her own saliva. Fast forward to 2020 and due to Covid-19, Lexi is sent home from school and we are told to shield her. Our daughter went from being a bubbly sociable massive part of our family to spending from March until September isolated in our home. Now 13 years old and weighing almost 30kg (small for her age, yet far too heavy to carry safely), because of her lack of mobility she uses a specialist wheelchair, which unfortunately weighs so much and is so hard to manoeuvre that I am unable to take her out on my own and when my elder son or her step dad are with us, even they struggle to take her far and definitely flat hard ground only. This has meant that Lexi has not been able to join us as a family in our daily lockdown exercise and so one of us has always to stay behind at home with her. It is a similar situation if we ever visit a beach, Lexi is left at the edge of the promenade and has never been able to get down to the sea. So many experiences that she would love, she just now cannot access. Unfortunately, the NHS will not fund an all-terrain buggy and the price tag is out of our reach. Now we are back into lockdown once more, we are also back to Lexi being more and more isolated from society and family life outside of the home. An all-terrain buggy would be a game changer, we have woods backing on to our home which the rest of our children enjoy playing in and walking our dog in and it would be great for us to include Lexi in this. It would also mean more freedom for me as a mum, I would be able to take my daughter out on my own, knowing that I could manage to get her up and down a hill successfully as the buggy is so much more lightweight yet still gives the support Lexi needs. The buggy also has an attachment so that it can be added as a trailer to our bikes. Lexi loves a bit of rough and tumble and she has had the use of a wheelchair bike in the past which she has loved. Her giggles were immense and her smile huge! We do not know what the future holds for our girl, she is classed as life limited and yet she has surpassed all expectations that the professionals have ever given us on life expectancy. As her mum, all I want for her is to experience the same quality of life as the rest of my children where appropriate, and I feel the use of this buggy would bring her back into the family and not left to one side always just watching not able to join in.