Weʼre raising £40,000 to fund a follow up stem cell treatment in Panama to halt and repair my aggressive Multiple Sclerosis
- Brentwood, Essex
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Thank you for opening my page. Please take a moment to read my story.
On my 30th Birthday, instead of celebrating I was in hospital being diagnosed with Multiple Sclerosis (MS). 5 years on and it is a living nightmare. There is no cure on the NHS. My only hope is Panama where a pioneering stem cell replacement is available.
I am now 35 years old and can only travel short distances with a walking stick or wheelie walker due to my worsening condition. MS causes the immune system to attack the nervous system causing the debilitating symptoms such as poor balance, sight & speech issues and weakness of my legs. Dietary changes, holistic treatments and supplements have made little positive difference to my symptoms. I have been forced to reduce my working hours and have become increasingly house-bound.
Last October I had my first course of stem cell treatment which helped improve the control in my hands, reduced my brain fog, cleared my speech and I felt stronger. The doctor in Panama explained that due to the nature of my illness I will need several courses of treatment to maximise the benefits. After 6 months my symptoms are returning. I am returning for my second course of treatment in July 2019. The money for this was raised during 2018. I am planning my third course of treatment for February 2020 due to the resistant nature of MS.
Successful stem cell trials are being done at Cambrige University. But given the speed at which my health is declining potentially leaving me wheelchair bound I have no time to wait for their availability. This is why I am asking for your further help.
I am truly grateful to my family and friends undertaking fundraising events. The fight is becoming ever more exhausting but I will not be defeated. I will be eternally thankful for any support of my cause. This treatment will make such an improvement to my life. I want to live a normal life like anybody else and start to make plans for my future.
Thanks for reading!
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- 6 months ago
Liam Egalton6 months ago
Wow thank you so much for everyone's support and fundraising to help me over the £10,000 milestone! This is a great early Christmas present! I am so grateful, but I have great fundraising events planned for 2020!! So I hope you all have a great Christmas and New year.
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May 29, 2020
Change collected by my dad and uncle thank you so much x
May 28, 2020
Change collected by my dad and uncle! Thank you so much =)
May 26, 2020
Money found by my dad and uncle, thank you so much x
May 15, 2020
I don’t know you but I wanted to wish you the best of luck. My mum was diagnosed at 40 with progressive MS and is still fighting it hard at 69!
Ali & Ro
Apr 11, 2020
Apr 8, 2020
Well done Auntie Steven! Love from the Hodges xx
Apr 8, 2020
Well done Stevie! Love The Sharmans xxx
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About the fundraiser
Diagnosed with Multiple Sclerosis (Secondary Progressive) Misdiagnosed on several occasions and dismissed by the NHS due to few drugs being readily available for my strain of MS. Travelling across the world to find hope and to finally recover to live a pain free life.