The only ‘cure’ for Lilly’s condition, called Rasmussen syndrome which affects just one in 1.8 million people, was to undergo a gruelling 18-hour operation to disconnect the inflamed right side of her brain.

A brave four-year-old girl is hoping to be discharged from hospital three months after a life-saving and life changing operation which has left her with half a functioning brain.

Lilly-May Harris, of Redhills, Exeter, was a normal happy and healthy child until she suddenly began suffering from seizures last June which grew in frequency and intensity.

Within a month the rare and rapid brain disease she was diagnosed with had robbed her of the ability to walk, talk, sit or eat and drink, and she was in constant seizure.

The only ‘cure’ for Lilly’s condition, called Rasmussen syndrome which affects just one in 1.8 million people, was to undergo a gruelling 18-hour operation to disconnect the inflamed right side of her brain.

Her parents Carly and James made the heartbreaking decision for their daughter to have the major surgery last October knowing it was her only hope but that she might not pull through it, and if she did the disabilities she could be left with were uncertain.

However, she is already making a ‘miraculous recovery’ having regained her speech and some movement, and it is hoped she might finally be able to come home later this month.

I have set up this fundrasing to help with her ongoing care, physio treatments, any alterations they need for their home and the finiancial worry with Carly being Lillys fulltime career and currently signed off work.

I can‘t even begin to imagine what you have all been through and how much of a superstar Lilly is.xxx

https://www.devonlive.com/news/devon-news/four-year-old-girl-left-2414441