Lilly is living with a rare, life limiting disease called Ataxia-Telangiectasia, more commonly referred to as A-T. Less than 30 people worldwide are known to have this variant.
A-T is a multi system disorder that affects the brain, immune system and increases the risk of cancers. People suffering from A-T have a shortened life span as there is currently no cure or treatment for this disease.

So, between now January 2019 and June 2019 I plan on doing a number of challenges to raise awareness of A-T and those suffering. In return, if anyone would like to sponsor me that would be fantastic. All money raised will be equally split : half will go to the charity "A-T society" who fund research into the disease and treatment, they have given Lilly and her family great support in these difficult years. The second half will go to Lilly and her family for their adventure of a lifetime this summer so that they can make treasured memories to be carried with them always.

Thank you in advance from me, the big cousin, and our family and friends.

To read more on Lilly and her story, click the link below (warning: contains heartbreaking content):
https://actionforat.org/lillys-story/

To learn more about the A-T society and their brilliant work:
http://www.atsociety.org.uk

To learn more about A-T:
https://actionforat.org/about-us/about-a-t/