This month has been devestating for our family. Last week Ash got diagnosed with Huntingtons disease. As if this wasnt awful enough now our beautiful Lily-Mae has been diagnosed with childhood onset of this cruel disease At only 6 years of age.

The reason for setting up this fundraiser is because her life has been significantly shortened (Prognosis of around age 15 at best). There is no cure or way to slow it down. She is already displaying syptoms and has deteriorated. We want to do as much as we can to make her little life amazing and make lots of memories before she is too unwell. Unfortunately we dont have the money to make all this happen in such a small amount of time. We would really appreciate any contributions to help us achieve this.

Our first goal is to take her to Disneyland Paris!

further goals and fundraising events will follow.

love and thanks from the Baileys

Ash, Rie, lily-mae and luna-rose xxx

Just a quick note to say Lil and Luna both have no idea that lil is poorly or what this means. So we ask you to be sensitive if you speak to us with the children present or if u tell your own children. lil has the same hopes and dreams as any little girl and i want her to still believe she will grow up and have babies and be a ballerina 💕