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£1,579raised of £62,695 target by 53 supporters

Weʼre raising £62,695 to help get my daughters life back

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Story

A parent trying to get my daughters life back. It's heartbreaking to watch her deteriorate. Fiona has a rare degenerative condition (stiff person syndrome) which causes excruciating muscle spasms, exhaustion and depression. This condition has many triggers IE loud noises, touch and emotional distress, which can set off muscle spasms making her scared to leave the house without a huge amount of prescription drugs. This is a progressive disease which affects all the muscles of the body (she also has damage to the part of the brain which affects balance), and if it goes to the respiratory system it will kill her. To see my daughter, who was once a hard worker, who had a thirst for living life to the full, deteriorate to being barely able to leave home on a "good day" and think back to how she used to be, is devastating. To see her often in agonising pain and bed-ridden makes me feel completely helpless. There however is a cure; Professor Sharrack from Royal Hallamshire Hospital Sheffield, has carried out tests on her and has concluded that she is an ideal candidate for HSCT (autologous stem cell transplant, as used on MS patients) which would cure her completely. The problem is that it won't be funded by the NHS. We are doing all we can to help fund the transplant operation but we need all the help we can get. Anything you could provide to help me get my daughter back and give her a future would be very much appreciated indeed!

https://spark.adobe.com/page/sNlYEc7U2ViQb/

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  • linda campbell2 days ago
    linda campbell

    linda campbell

    2 days ago
    Update from the Page owner

    Thanks so much everybody, your help is extremely appreciated. We are also trying to raise funds by selling calendars and doing various fund raising events. A step closer to our goal.

    Share this update to help us raise more

1 month ago

linda campbell started crowdfunding

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Page last updated on: 8/20/2018 3:17 PM

Supporters

53

  • joe fea glesga

    joe fea glesga

    Aug 20, 2018

    hope you get well soon x p.s. i dont think your justgiving page is working i have been trying to donate since last week

    £10.00

  • Ed

    Ed

    Aug 19, 2018

    First I wish you well I heard a similar thing on BBC radio 4 the lady had to travel to Mexico to get stem cell treatment even though trials were being done in Sheffield they said she was to old ?

    £4.00

  • Adele

    Adele

    Aug 18, 2018

    People who you have never met are thinking of you and supporting you. Best wishes

    £10.00

  • Anonymous

    Anonymous

    Aug 18, 2018

    I hope you recover quickly

    £50.00

  • filomena papa

    filomena papa

    Aug 17, 2018

    £20.00

  • Anonymous

    Anonymous

    Aug 17, 2018

  • Anonymous

    Anonymous

    Aug 17, 2018

    I know what it is like to have your life turned around, I also rely on PIP to get. I know this is not much but I hope it helps a little.

    £10.00

linda campbell

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linda campbell

linda campbell

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