A parent trying to get my daughters life back. It's heartbreaking to watch her deteriorate. Fiona has a rare degenerative condition (stiff person syndrome) which causes excruciating muscle spasms, exhaustion and depression. This condition has many triggers IE loud noises, touch and emotional distress, which can set off muscle spasms making her scared to leave the house without a huge amount of prescription drugs. This is a progressive disease which affects all the muscles of the body (she also has damage to the part of the brain which affects balance), and if it goes to the respiratory system it will kill her. To see my daughter, who was once a hard worker, who had a thirst for living life to the full, deteriorate to being barely able to leave home on a "good day" and think back to how she used to be, is devastating. To see her often in agonising pain and bed-ridden makes me feel completely helpless. There however is a cure; Professor Sharrack from Royal Hallamshire Hospital Sheffield, has carried out tests on her and has concluded that she is an ideal candidate for HSCT (autologous stem cell transplant, as used on MS patients) which would cure her completely. The problem is that it won't be funded by the NHS. We are doing all we can to help fund the transplant operation but we need all the help we can get. Anything you could provide to help me get my daughter back and give her a future would be very much appreciated indeed!

https://spark.adobe.com/page/sNlYEc7U2ViQb/