Florence holds a very special place in my heart and her Mum is a wonderful friend to me, due to Florence‘s condition she can’t talk but she can laugh and when she looks at you she connects with you more than any words can express she radiates love and joy for life

I felt helpless when I learnt of the condition she has - I know I can’t take the pain away for all who love her but I can help to make a difference in the short amount of time Florence has left in this world by raising as much as I can so her Mum and Brother can enjoy some fun times together!

Little Flo is eight, soon to be nine in January, she suffers from a condition called GM-1 its a rare genetic disorder that destroys nerve cells in the brain and spinal cord.

The facts:

There is no cure to date

There is clinical trials but Flo is now too old to take part

The life expectancy for Flo sadly is ten years of age

Please help me help Flo have the best times of her life and give what you can - as a way of thanks I will be doing a tandem skydive from 15,000 ft on 26th November. XxX